What a difference a day makes 😢😢

💐💐💐

Sending lots of love to you and Henry.

Fantastic and uplifting news Cossy about your tiny grandson, Henry.

What a big step..bless him.. take care now Cossy

Glad to hear Henry is still fighting on. He's a little trooper.
Look after yourself Cossy. Very stressful time so no wonder you aren't very well.

Thinking of you all Cossy. If Henry's in the Homerton it's a wonderful hospital in specific areas of medicine, including care for prem babies. I'm originally a Hackney girl and that hospital has provided superb care for members of our family including two tiny premature babies who went on to thrive. Keeping my fingers firmly crossed and sending Henry and all your family my best wishes

It's such good news that Henry is doing so well. You must be very proud of him.

Morning

A rather horrific and harrowing week at Homerton, long story shortened;

1) Only 1 nurse in NICU with 5 babies, Henry’s breathing tube disconnected twice, second time DiL had to run out of NICU to fetch a nurse as Henry’s heart rate and oxygen levels dropped very rapidly,

2) 3 separate incidences with lack of stoma care, one resulting in my daughter watching waste pour out over an uncovered Henry for 45 minutes as nurse panicked

I travelled to Homerton on both Sunday and Monday to raise my concerns.

Logged it all first with PALs and they arranged for parents, and myself and the other GM to meet with a professor and Matron yesterday.

Luckily I did my research first around policy/protocol/processes in a NICU and Homerton and clinical processes and then fully explained calmly and with clarity.

Result is several apologies, no attempt to excuse or deflect, full clinical update, several pages of notes taken by Matron, and authorisation for me to phone up anytime, day or night, and speak with any member of staff.

Mummies feeling far more comfortable now to 1) ask questions, 2) that any breaches of protocol will both be reviewed and immediately addressed.

Good news is, despite everything, Henry is now a whopping 3lbs and is stable more than unstable.

There are concerns around his eyes and brain bleeds, but almost everything else is now improved.

Very gruelling two days for us all, but well worth it for both our own Henry and every other baby on their wards.

Onwards and upwards 🙏🩵

Well done Cossy; congratulations on brilliant Granny-work with the hospital.

That sounds horrific and very frightening, Cossy.
One nurse to five babies in NICU, even if all were stable and ready to go home is contrary to regulations surely?

The other(?) nurse does not sound sufficiently qualified and experienced if she/he panicked.

Thank goodness you are able to stay calm, clearly explain to senior medical staff and that action will be taken to ensure breaches in protocol will not be repeated.

Oh Cossy, you are having to be so strong for everyone. sending love to you all x

What an awful experience for you all Cossy fortunately you are knowledgeable and articulate enough to know how to deal with the situation, I feel many wouldn’t be and that way trouble lies.
I hope the concerns you raised are being dealt with properly and that Henry continued to thrive without you all worrying what is happening when you aren’t there.

Congratulations for handling everything so well. Especially in the circumstances.

Thinking of you all Cossy. You’re a warrior Granny 💪 💐💐💐

Go Cossy, go.

It is a reality across large areas of care that the loving ones need to do some of the joined up thinking and the "noticing bits".

Your family is very fortunate that you can do this. Just be the self that you are, that your life's experiences have made you xx

Scary for you all Cossy and it is good things turned out ok. It is surely slow and steady. V
You are a strong lady and I am sure the 2 mums are,too. Hopefully all this will be just a memory soon when Bub can go home.

Well done Henry’s grandma. ✔️

Well done, Cossy. I’m sure I wouldn’t have been able to stay so calm in such worrying circumstances.

Well done from me too. And lots of love to the 3lbs Henry!

What a whopper Henry is! Glad you were around to sort things out with the hospital.

What a little Bobby dazzler!!
Sorry to hear about what happened, that shouldn’t have occurred, good work Cossy but hope you are getting some rest after being unwell💐💐

So sorry to hear about what happened, Cossy. I do hope that there are no more instances like that. Well done to the wee fellow for gaining so much weight. 💐

Had lunch on Saturday with our family’s less than 2lb prem. baby. He is 34 now and expecting his own first child. Such excitement. He is a gentle, intelligent and successful man whom the whole family love.

Good job you’re on the ball Cossy very well done.

3lbs!!

What a lot of stress for you all. Well done for sorting things out 💪