Waiting for memory clinic referral

My experiences ten years ago when going through the same procedure with my mother was that there were countless leaflets but no practical help. It sounds like you have already taken the most important steps, well done. One resource I did find invaluable was the forum of the Alzheimer's Society website. Free to join and peopled by many others in the same situation. I found several threads written by people who had experienced what I was going through and much of the advice was invaluable,- particularly in helping me to understand what was happening and how best to cope and deal with it.
I wish you well.

I agree with Marmin, my mum died 13 years ago after some years in a care home due to her dementia.
Would say that on the day she was diagnosed she was also discharged , so we had no help support or advice from the nhs from then on.

Please contact Alzheimer’s society who have numerous resources to support those with and those caring for people with dementia.

I am sorry about your dh, it is a cruel disease.

I volunteer for AgeUk's Memory Service. You can access their services at any time even if you haven't had a final diagnosis. They are really good at signposting and offering advice.

The Alzheimer's Society has lots of great fact sheets on their website and a forum called Talking Point.

Admiral Nurses are really good points of contact if you have one in your area. They have a helpline which is listed on the Dementia Society website.

My main volunteering area is helping to deliver Carer Learning Courses which are brilliant for helping you with strategies and also benefits advice and looking after yourself.

There is lots of help out there.

Thank you for your really helpful suggestions - I think I'm going to need them. My mother had dementia towards the end of her life (90s) but was able to be cared for at home until the final 3 weeks, but somehow it seems a lot worse when it's a husband who you've lived with for over 50 years. I often wonder what would happen if both partners in a couple get a dementia diagnosis? I suppose it depends on family support, if available? Increasingly important, I think, to look after myself too if possible!