Gransnet forums

Chat

if you could choose how to die (please dont read this if you are likely to become upset)

(47 Posts)
petunia Sun 11-Nov-18 12:36:01

This is a grim thread, not for the faint hearted.

Last night I spent some considerable time talking with a friend about growing old. Both of us had cared for parents before their deaths, my parents both had dementia, one of her parents had COPD. We were contemplating our own futures while reflecting on the long lingering deaths of our parents. (We did move onto lighter things later, ha ha)
We were discussing, is it better to be totally mentally aware with a failing body or to have increasing mental fragility but an able body.
Having watched both my parents’ mental decline and increasing indignity, I felt that this is a dreadful and heartbreaking way to be. I know my parents, had they been aware, would have been deeply mortified and ashamed by the way they had to be cared for. I’m thinking hear of being helped to the toilet, needing someone to wipe their bums, wash them, feed them, and dress them.

My friend, whose mum remained mentally alert, suffered horribly with her disease and was able to articulate her pain and discomfort right to the end.

I know many people remain fit and well into a ripe old age and also that we do not have a choice as far as health is concerned. But I am interested in other people’s perception on this. If you did have a choice, would you prefer to remain mentally aware until the end or would you choose the slow mental decline into oblivion

I did say this thread is not for the faint hearted.

Jalima1108 Mon 12-Nov-18 11:54:13

petunia there are such advances now in the treatment of some illnesses that I would also say that 'where there's life there's hope' but I do think that should be up to the individual.

petunia Mon 12-Nov-18 08:17:27

There have been some excellent responses here. I’m glad I’m not alone in the way I think of death.
It is a tough one isn’t it? And it’s a first world problem really. So many of us have spent decades being in control of our lives, it seems unthinkable that we shouldn’t be in charge of our deaths.
I do feel that thoughts of our deaths should be shared with our loved ones although that is a tricky conversation to have. My blood boils when in the news a family have overridden an individual’s desire to be an organ donor. And it’s heartbreaking where families beg that their loved one is saved no matter what it takes.
The quality of life is so important. If I’m robbed of my dignity and mobility, maybe in pain, subjected to tests and medications due to some hideous, progressive illness, I want to be allowed to say-no more. To be dragged back into life to suffer more of the same is a torture beyond bearing.

Apricity Sun 11-Nov-18 22:29:39

These are conversations we need to have with our families too. We need to talk about and to document our wishes for our own end of life care. If I found the continuation of my life intolerable I would hope to have the legal option of going at a time of my own choosing.

Having worked in hospitals it is heartbreaking to see very frail elderly people being subjected to dreadful "life prolonging" interventions at the insistence of relatives. Medical staff hate performing aggressive recusitation as it can result in broken bones and severe bruising but feel obligated because families insist, often through misguided care or, sometimes, guilt for other things not done.

For me, I'm aiming for the century, hope to have kept most of my marbles and still be dispensing wise counsel to all and sundry, to be at home listening to some lovely music, enjoying a glass of fine wine and to slip away with my family around or at least very near. That would indeed be a good death. ??♥️

Jalima1108 Sun 11-Nov-18 22:28:08

70 seems a reasonable age to say goodbye
You're obviously way off that age then Millbrook

I think GN would close down for lack of members!

Jalima1108 Sun 11-Nov-18 22:26:27

Sitting on a terrace enjoying warm weather, overlooking the sea, compos mentis with a glass of wine in my hand then just nodding off peacefully.

Preferably hale and hearty hmm up until that point at about 95+ or so.

lilypollen Sun 11-Nov-18 22:22:29

Sadly just dealing with old friends of whom our lady friend has early onset dementia, husband is finding it difficult and they don't have children so what will the future bring for him? For myself I hope DH and DSs will respect my dignity as they know me (too) well.

Maggiemaybe Sun 11-Nov-18 22:22:26

I doubt there’s ever a good way to die, but I’d like it to be quick, and before I become dependent on others for whatever reason. If not lemongrove’s very competent hitman, perhaps something like the final Concorde flight, that exploded two minutes after take off. Which would also have the advantage of an insurance payout for my family.

Grannyben Sun 11-Nov-18 21:55:21

Losing my mind fills me with absolute fear. I would hope that l could end my own life but worry that I wouldn't know when the time is right. As others have said, I also couldn't stand to be a burden to my daughters.
I'm quite good with pain so, if I could choose, I would go for the physical illness.
I so want to see my dgc grow up and, be there to support my dd's. I would be disappointed to think I'd popped off too soon.
I'm working on the basis my life hasn't really been that good so maybe I'm due a good exit

lemongrove Sun 11-Nov-18 18:37:44

70! shock Hoping for much longer now that particular age is looming.

Millbrook Sun 11-Nov-18 18:32:33

This is a fascinating thread Petunia - not grim at all, but an important subject that I think should be discussed more. Thanks to all who shared their views.

For me, I don't want to be around too long, and I'd like to be able to choose my own exit, regardless of my health! 70 seems a reasonable age to say goodbye ( I appreciate that's young for some, but obviously it's all personal choice). I would prefer it to be physical rather than mental decline, because the latter can leave a dangerous grey area over 'mental capacity' for assisted dying.

And I do hope by then we have introduced our own version of Dignitas so that people don't have to leave the UK - in a country where we have so much technology to be able to keep people alive, it seems ridiculous that we cannot allow people to choose to die a pain free death when they want it.

Lots of work to do to get these 'death' issues on the political agenda. Hopefully the baby boomer generation will begin to turn their attention to this more in the next 10 years......

MissAdventure Sun 11-Nov-18 18:01:30

That sounds like a real treat compared to some poor souls.. I wouldn't mind myself, now you mention it.

lemongrove Sun 11-Nov-18 17:58:05

I think that possibly being shot in the head by a very competent hitman, when I am 95 may be a good way to go.

oldbatty Sun 11-Nov-18 17:46:39

if anybody has recent first hand knowledge of what is available for very elderly people who to put it bluntly don't have long left, I would be very grateful if you could message me.

I don't have a clue and nobody will talk about it.

MissAdventure Sun 11-Nov-18 17:43:05

Palliative care services were worse than useless for my daughter.

sodapop Sun 11-Nov-18 17:31:36

I think in the final analysis I would rather have an assisted death than dementia. As someone else said, people with dementia have periods of lucidity when they know what is happening and often are frightened and upset. No way to end your life.
Hospice care is very good I've heard but not available everywhere. More training in end of life care is needed for carers and NHS staff.

BlueBelle Sun 11-Nov-18 17:18:32

Your mum and my mum sound similar chicken it’s inhuman isn’t it
I find it so difficult that the pain could not be kept in control in either my mum or dads last days although the doctors tried them every obituary I 3ver read says ‘died peacefully’ I can’t believe my precious mum and dad were the only people to not die peacefully
I don’t believe in euthanasia so I have to take my chances I guess and hope I can handle it

chicken Sun 11-Nov-18 16:55:51

I'd much rather keep my marbles and fade away bodily than have to suffer dementia, My mother had her last five years in a nursing home with senile dementia and the after effects of a stroke. She was semi paralysed, stone deaf, almost blind, doubly incontinent and choked over every mouthful of food. If I had kept an animal in that state, I would have been prosecuted. My brother died while sitting at his computer, having been in apparently good health. I don't suppose I'll be so lucky. The women in my family seem to linger, so I have a little cache of pills stashed away. Trouble is, they are getting way past their sell-by date by now, so I don't know if they will still work!

Baggs Sun 11-Nov-18 16:51:05

I think some people are using the term euthanasia too loosely. Those arguing for assisted dying in the UK do not argue for euthanasia. The difference is clear: assisted dying is chosen by and applied by the person who chooses when to die (essentially they kill themselves); euthanasia is when someone else decides it is time for a person to die (and kills them).

cornergran Sun 11-Nov-18 16:42:45

Dignity and independence are very important to me. If I were able to choose I would opt for cognitive ability and a physical illness to manage and be managed for me.

I was brought up in a family where death was accepted as a part of life. Both my parents died in the location of their choosing, my Mum at home, my Dad in a hospice. I can only hope I can achieve the same thing.

Anniebach Sun 11-Nov-18 16:35:16

Hopefully not dementia, definately not ending my life,, but if I had a choice which I won’t, then with the knowledge I was soon going to meet my God

B9exchange Sun 11-Nov-18 16:23:55

My mother had 20 years of severe depression, followed by Parkinson's brought on by the drugs, and then dementia brought on by the Parkinson's drugs. Don't imagine you just drift off, people with dementia have lucid moments when they realise what they have become, and also the frustration and confusion is terrifying for them. My father died in hospital suddenly, caused by hospital mistreatment, and yet at 89 they tried to resuscitate him, both terrible ways to go.

But it doesn't have to be like that. I volunteer at a hospice which provides hospice care at home, and the aim is to give everyone a good death. The actual moment is, in the vast majority of cases, after prolonged periods of sleeping and gradually lapsing into a coma and slipping away. There are now 'death midwives' and death doulas'. If that sounds bizarre, think about it, we need help and support when giving birth, why should that be any different at the only other certainty in life?

GPs and hospital doctors will use discretion to ease people out of their pain, of course it isn't laid down by statute, and I pray it never will be, I would trust them to do what is needed. Euthanasia in Holland is now as easy as abortion is here, and only a couple of days ago there was the case of the lady who had signed a euthanasia directive as she had progressive dementia, but wanted to go at the time of her choosing. They kept asking her and she would reply 'no, not yet' so she was drugged in her coffee by her doctor and then dispatched. Be careful what you wish for!

Witzend Sun 11-Nov-18 16:19:37

Anything but drawn-out dementia, and preferably quick!
My mother had dementia for some 15 years, and was in a most pitiful state for her last few years - doubly incontinent, not knowing any of her family, unable to hold any sort of conversation, no clue about anything.

Dh and I have recently drawn up Powers of Attorney for both finances and health and welfare. In my H&W one I have made my wishes very clear in the case of dementia, or any other condition where I am unable both to care for myself, and speak for myself.
No life-prolonging interventions, whether surgical or medical - palliative care only. If Nature is trying to let me go in such circs, then for heaven's sake just let her get on with it.

Personally, having seen far too much of dementia and care homes over the years - 3 relatives have had it - I think there is far too much 'striving to keep alive' of people who are already very elderly, with well advanced dementia. In and out of hospital, on drips, pestered and badgered to eat and drink when they no longer want to, stuffed with all sorts of supplements and medication to keep them 'healthy' - for what???

Just recently I read of someone over 90 with fairly advanced dementia being given a pacemaker - and it was the relatives who made the decision, after doctors gave them the option of doing nothing, in which case (as the drs told them) the person would probably have slipped away quietly in their sleep.
IMO this sort of thing is just crazy - not to mention an appalling waste of NHS resources.

Framilode Sun 11-Nov-18 15:55:37

My dad had terminal cancer and spent his last few weeks at home. He had a marvellous GP who stocked up a lot of morphine in the top of his wardrobe. She always said to him he would know when the time was right to use it.

One evening he was in a lot of pain and we sent for the GP.
She gave him enough morphine to get rid of the pain and said she would come back in two hours. He had a last cigarette and then had time to talk to both my mum and me before the GP returned. She then gave him enough morphine to bring his life to an end.

Almost certainly illegal but tremendously kind to save him those last few days of suffering.

BlueBelle Sun 11-Nov-18 15:22:39

I ve often thought about this I watched both my parents have horrible deaths my mum had seven years of increasingly awful dementia she couldn’t hear had cateracts couldn’t speak only in gibberish she sat so long with her legs crossed at the ankle that they fused that way and she couldn’t walk she was doubly incontinent I don’t know how much she knew or how much she didn’t realise She had a massive heart attack I held her hand for 24 hours and although they gave her intravenous pain relief they didn’t get on top of her pain
My dad became unwell and was told he had terminL stomach cancer he spent three weeks losing blood in fear and pain and shock before finally passing away I was by his side They were both horrible deaths
I always imagined I d just find them one morning asleep in bed it was a shock
I often wonder what my end will be like I hope I m unconscious and don’t know much about it I do feel it’s on the horizon though

FlexibleFriend Sun 11-Nov-18 15:14:39

I think it depends on what stage of life you're at my Mum died when I was 14 she was 48, she was in and out of hospital for two years and in that time not only did we all have time to adjust and accept the situation but we talked about just about every little thing I'd encounter in life. Pretty sure she had similar chats with each of us. So of course I've missed having her around at all of life's milestones but knew she was there with me every step of the way. So I'm now 64 not likely to make it to old age thanks to my auto immune condition that's had several serious attempts at bumping me off already. All things considered the way my health is now I'd quite like the way my mum went. Keep my mental faculties while slowly deteriorating physically. I've already dealt with so much physical crap I'm pretty sure I could cope with anything.