Having a terrible day

This must be very stressful for you Luckygirl, you have a lot to cope with.

I know it's a silly cliche but "a problem shared...."

I'm not in a position to offer any advice really other than my experiences with my late grandma and grandad and I know that once my grandma had spoke to us about what she ( and grandad ) were suffering we all rallied round to help . Sadly not a cure I know but we could offer practical help and help my grandma get the help she clearly needed.

So sad to read this lucky it must be very frightening to. I hope your children rally round when you've had a chance to explain things to them.

A good thing that you talked to your DD. I hope the nurse can sort the tablets Monday.

Thank you for your kind messages. I feel concerned that he is being over-medicated. I looked up his weight online and it is the average weight for a British 12 and a half year old boy; but he is on adult dosages.

I do so hope that it is the drugs that are the problem as this gives some hope of creating some improvement.

Medication is a real problem isn't it. We are so thankful for its positive effects but often the downsides are s real worry. Your point about weight and dosage is important Lucky. I'm sure you're on top of the beet person to raise this with. It's exhausting though, to be a sole carer, wife. Mother. Grandmother, sister, aunt and somewhere in that mix, a person dong their best and trying to live their own life as well as take care of and consider the needs and feelings of everyone else.
Thinking of you x

The consultant rang this morning at 8.30 in response to my letter. She thinks it is likely that the problem rests with one of his drugs, so she is faxing the surgery to organise smaller tablets and a phased reduction of this. I doubt the surgery will have these drugs in, so I will try and get a prescription from them and tout round the area trying to find a pharmacy who has them. So hopefully in 2 weeks and 3 days he should be off them completely.

Unfortunately this will probably result in an increase in his motor symptoms, but we have to choose a balance of symptoms - we can't have none sadly. From my point of view I can cope with his physical problems, but not being under irrational suspicions all the time - it is very creepy and I find it quite frightening. But he has the right to choose which is more tolerable for him of course.

If this does not work then we will know that the delusions are part of a PD dementia for which thee is no treatment. All we can do is keep our fingers crossed and hope this will do the trick.

I hope this will be the answer Luckygirl.
We take medication to alleviate a problem only to find that it can cause something else; it's finding a balance and I'm glad the Consultant is understanding.

That. is good to hear . Consultant sounds so helpful , OHs consultant has more or less disharged him and left us in the "care" of the GP , the District Nurse is our main help , she comes to do bloods and the tablets get tweeked from this . Fingers crossed the tablets are the cause and the loss of them doesn't cause more problems

I hope things are a bit better today.

Are you in touch with any Parkinson's support groups or Carers Support Groups? They have helplines etc that you can call on a bad day

Try - www.parkinsons.org.uk/information-and-support/local-groups

Thank you franjess - I have been in contact with my local group, but there rae difficulties in getting support from them as my OH was a very ell-known professional man and feels embarrassed about his current condition.

The surgery have been very helpful indeed and have ordered the tablets we need and hope to have them there tomorrow - there is no other pharmacy around here who has them - they too would have to order them in. So he has had to take the higher dose again today as just stopping them is dangerous. But we should be on track to reduce them from tomorrow.

So glad to hear you've had a prompt response from the medics and are hopefully on the way towards some improvements. I'm guessing it's hard for your husband to find himself in this position having previously been the person who dealt with all manner of delicate health related difficulties for other people. Nonetheless it's important for you to access support for yourself.

So pleased to read your update