Not sure Chat is the right forum but Health is so off-putting!
Having received a pasting from the estrangement threads I decided not to post any more but I found out last night that May is Ehlers-Danloss Syndrome Awareness month, so I felt that it was meant that I should make this my last post.
ED is a genetic condition that affects the production of collagen in the body. That doesn't sound too bad but it's symptoms can range from mild stretchy skin to the permanent dislocation of joints and the collapse of vital internal organs.
It has only been diagnosed relatively recently and there is no test to identify carriers, no treatment and no cure.
It was this condition that gave my grandmother and mother their severe disabilities from their early thirties and led to their early deaths. That caused my sister's and daughter's inability to carry babies to term. That caused the death of a grandchild. That has led my sons to the decision that they will not father children that will, at the very least, be carriers of this condition.
I thank you for reading this far. If you see someone shaking a box in the street in this Awareness month please consider dropping in the odd 50p. If they can dislocate their shoulders and pop them back in again that might be me doing one of my party tricks ?
You can find more info on Facebook if you are interested. Thank you.
