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I'm tired and emotional.....

(57 Posts)
jogginggirl Thu 28-Jul-16 23:59:40

..... after a very long day! we moved my mum from her home of 65+ years into very sheltered accommodation (VSH). She has a lovely little flat with her own kitchen, lounge, bedroom and bathroom and we have taken as many things as we can to re-create her original home.

Mum has been very brave about this move although, because she suffers with dementia, it's clear that sometimes she understands and at others she doesn't ?

She was very happy when we left her but later called me to ask "where am I"; "why am I here"; "will I have to stay here for long" ... emotional and heart-wrenching stuff?

My cousin called in to see her a little later and found her very confused but, on leaving, she said that mum was more her old self and seemed a lot more relaxed.

This is possibly the hardest thing I have encountered since my dear dad died nearly 20 years ago....

Please tell me it gets better ....?

Anya Tue 02-Aug-16 14:12:30

((((hugs)))) from me too

Maggiemaybe Tue 02-Aug-16 14:55:08

And from me. Try not to worry too much about what will or might happen in December, jg. There are always so many twists and turns, tos and fros, argies and bargies with committees and public bodies that all the plans currently being discussed might well come to nothing. Let's hope so, anyway.

I know it's so hard, but try just to concentrate on the here and now, and carry on as you are doing so ably, supporting your mother to settle into her new environment.

cornergran Tue 02-Aug-16 16:00:29

Me too, jg, I think maggie is right, if you can concentrate on making today as good as it can be that might help, but of course easier said than done. Take good care of yourself with the travelling.

annsixty Tue 02-Aug-16 16:15:49

No help just sympathy, as you said things should have been easier now. We should hope for the best and expect the worst.

Neversaydie Tue 02-Aug-16 16:45:42

Have been down this road with MIL .Started out as multiple infarct dementia and then she developed Alzheimer's as well (they present slightly differently) .She had to go into care after a fall (the last of many-we worried about her living iindependently though we were only a ten minute drive away )tipped her over into full blown dementia.Had it been only physical fraility she would have had to have been dragged kicking and screaming, so ironically the dementia made it easier .She was 91 though and lived for two further years
I too nearly chose a "posh'home as she was a terrible snob but eventually went with gut feeling for somewhere much more homely The care was exemplary
The worst bit for me was when she seemed to withdraw completely from the world .For the last year of her life she said only 'please' and 'thank you '.And she recognised no one.I made my children (her only grandchildren) stop visiting as it was so upsetting .
You have my sympathy .Had it been my own mother it would have been unbearable. .DH has a terrible fear of dementia and found it hard to visit (they were not close) so I was the one who tried to be 'there'for her So hard .

jogginggirl Wed 03-Aug-16 00:17:58

Thank you again for all your thoughtful and helpful posts. I am a little calmer today and I am beginning to see the road ahead.
Indeed, I do have a few months before I need to kick 'a**' and in the meantime we need to gather knowledge that will help us to move forward. There are 30 people in the VSH scheme - many of whom need 24/7 care. I guess the first thing we do is lobby the council with the needs and expectations of these people. The scheme can no longer be referred to as a Very Sheltered Housing scheme if they don't provide 24 hour cover...... and if some of the residents need full time care in a nursing home etc...the costs could be much higher than providing the 24/7 care they have been used to.

I have to say I feel a chill go through me when I think of my 'old age' (although at 64 there are many who would say I am already there!) I plan to be ready - ready as I can be - I never want to get to the stage where I need others to make decisions for me - I am in the throes of doing just that now - my kids can hardly deal with their own lives (both personal and working) I do not want to add to that burden.

All of your advice is taken on board regarding my mum and is filed in my brain for future use....
Thank you all so very much xxxxx