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Revised heart attack definitions which affect women

(31 Posts)
Luckygirl3 Wed 02-Sept-26 07:52:18

I was intrigued to see this announcement.

My heart attack went undiagnosed in the first A&E I attended (while on holiday) as my troponin levels ( a chemical that indicates heart damage) were not too high. They were rising but were below the danger level that is based on the norm for men. They discharged me saying I was in oesophofeal spasm, in spite of the fact that I had known atrial fibrillation and had failed an exercise test at home hospital and was awaiting an angiogram there. So a cardiac history that should have rung alarm bells!
When I got home I was still unwell and I was taken by ambulance into my local hospital where the heart attack was diagnosed and treated with a stent to my right coronary artery, which was blocked to 94% at one point. I was very lucky.
The fact that they are now recognising the need to diagnose women on a lower troponin threshold in is very good news indeed.
It would be interesting to know what other medical thresholds are based on research with men.

BrandyGran Wed 02-Sept-26 21:04:53

I had discomfort around my jaw and felt a bit ropey( I have felt loads worse many times.)
My daughter took me to A&E and I fell asleep waiting for blood results! I was told my treponin levels were very high and rising! Blue light ambulance to different hospital through the night where 4 stents were inserted. I was told I had dodged the bullet.
Symptoms can be totally different for a woman as in my case. If you sense something isn’t right go and get checked.
It was the ropey feeling that was different for me.

SueDoku Thu 03-Sept-26 07:43:00

Get hold of the book 'Invisible Women' by Caroline Criado Perez. It's brilliant - and will open your eyes to the ways in which all of life is shaped by data only tested on men...!

Gwyllt Thu 03-Sept-26 08:23:22

Misdiagnosis is common in all fields. During covid I had horrendous chest pain Husband called ambulance. They said not heart attack but took me to hospital anyway. There I was filled full of morphine over night and virtually told not to waste their time. GP sent me back to hospital three days latter. Turned out I had vasculitis and a dissected aorta. Which fortunately hadn’t ruptured

Marydoll Thu 03-Sept-26 09:13:12

I have experienced this.

For year, I had been experiening chest pain, which had been diagnosed as related to my COPD.

After taking ONE new rheumatoid drug, I had a serious allergic reaction . After hours in A&E, I was shocked to be told I was being admitted to coronary care, I had had a heart attack.

All the scans and were clear; clear arteries, healthy heart etc.
I was asked if I was willing to be part of a BH F funded research programme into investigating why so many women in the West of Scotland were dying from undiagnosed heart attacks.

It took six months of scans and investigations , which eventually diagnosed microvascular angina, formally known as Cardiac syndrome X.
It was called this, because it was extremely difficult to diagnose.
It transpired that the pressure in the micro vessels inside my heart was dangerously high.
Unable to be sedated, I got to see inside my heart, when I had a very invasive angiography. It was fascinating.

If I hadn't had that first heart attack and been part of the research, I would have been dead by know.
I did have a second heart attack, while I was shielding ( scary stuff), but it was mild, due to the amount of medication I was taking.
It was trial and error as there was no definitive treatment for this condition.

A few years later, I became unwell and a bold trainee GP phoned the professor in charge of the research. I was in hospital the next day.

Apparently, his research has changed the way, women with chest pain are diagnosed.
I will be forever grateful to Professor Berry and his team at Glasgow Queen Elizabeth Hospital.

Fallingstar Thu 03-Sept-26 09:53:22

Until the medical profession start studying the female body as assiduously as they have been studying the male body for centuries we will always have to be our own best advocates and be proactive in seeking help for any symptoms we consider unusual/troubling, not only for ourselves but our DDs and GDs.
the time for change was a very long time ago and countless women have died needlessly so far.