I worked with the Macmillan palliative care team in my area in a clerical role, while they were part of the discharge planning, they were not the carers in the discharge plan , that was usually done with the district nursing team and possibly a care agency . Before the person is discharged you should have a team meeting of all the people who will be involved and hopefully they can help you get the answers you need. My team were more involved in pain relief and psychological support for the person and their family, but they could get other agencies in to help. Night sitting if required was provided by Marie Curie nurses. Not all areas are the same, so what happens in one health authority might not in another. I hope by now you have a plan put in place.
Thank you for all your thoughts. Sadly I lost my dear husband this morning. I am so pleased he had his day in the sunshine and fresh air. I will miss him so much
You’re all really kind and I thank you for your good wishes. I never thought DH would feel the sun in his face again but today they put his bed outside and he sat in the sunshine overlooking the water and said he was happier than he’d been for a while. So calm and quiet here. We are close to home so family finding it much easier to visit. Again thank you all again for thinking of us. x
You’ve had such an horrendous time, both of you Doodle hopefully now some real help from those with experience will give the care required and some solace to you xx
So pleased your DH is now in a hospice Doodle. It will give both of you peace and comfort. My Dad was cared for in a hospice and just knowing he was being looked after and kept pain free lifted such a burden from the family. Will keep you both in my prayers.
I’m glad to hear your DH has a hospice place, Doodle. There are, sadly, too few hospices. My DiL died in a hospice attached to their local hospital. It was a calm happy place, and they looked after both her and my son superbly. Nothing was too much trouble. My son slept there latterly, and when I took him in cooked meals, they were happy to reheat them for him. They made an awful time so much more bearable.