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Pancreatic insufficiency

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Bobkin1 Fri 15-Jul-22 19:40:10

Does anyone take Creon for pancreatic insufficiency, just wondered how people get on with it, ive been taking Creon for thepast 6 months. Thankyou

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Purpledaffodil Fri 15-Jul-22 21:10:03

I have taken it for 4 months. No particular problems but the dosage is very variable. Dietitian said 2 for a meal 1 for a snack.
Other expert advice said to treat it like wAshing up liquid. As in more with high fat meals. Maybe up to 8 with very rich meal. Lots of trial and error

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Sparklefizz Sat 16-Jul-22 09:39:36

If anyone is interested, I run a closed Facebook support group for people with Pancreatic Insufficiency. We have nearly 5,000 members all over the world and learn a lot from each other. I have EPI myself.

Search for Living with Exocrine Pancreatic Insufficiency if you fancy joining. All posts in the group are private, nothing appears in your FB feed.

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Barleysugar Sat 16-Jul-22 13:44:56

My DH has now been taking Creon for well over 10 years having been diagnosed then with an endocrine tumor on his pancreas. He has been extremely fortunate - has a monthly endocrine injection too which is keeping everything ok .
He couldn’t cope without Creon though. He has approx 7 with a main meal & 2 to 3 with snacks.
Interested in the support group +Spaklefizz.

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Sparklefizz Sat 23-Jul-22 11:21:19

Barleysugar You would be very welcome. Do come and join.

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