I have had this all my life It was diagnosed by a Broncogram at the age of about 12.
It disrupted my childhood quite badly. These days things are better, I am looked after by a specialist hospital, which is brilliant. Early intervention with antibiotics both oral and if necessary intravenous antibiotics can stop infection before it takes over. There are all sorts of 'tools' to help. Postural drainage, Active breathing cycles, Flutter machines all help to keep lungs as clear as possible. It is important to recognise changes in the lungs and ask for early intervention if infection is suspected.
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