Please hold my dear GD in your heart for a few days.

I truly hope your granddaughter gets on the trial as it must be horrendous for her living like this and exhausting for the immediate family.
My heart goes out to all of you.

Posts like this certainly put life into context don’t they? we wake up with a few aches and pains and then read about the struggles this beautiful child faces daily! I am keeping her and the family in my thoughts and wishing them all the love and luck! I do so hope she is accepted for the trial 🤞💐

your much loved granddaughter will be in my prayers, and I'm hoping like other gran,netters that this trial will make a huge difference to her and all your family.wishing your darling grand daughter all the very best .

I hope she can get the help she needs.

You’re in my thoughts.

Praying for your brave young GD Willow
🙏

Everything crossed for your brave GD Willow, for her parents and you. I have a friend whose GGS has just has surgery to reduce epilepsy. Too early for results, but the worry has been enormous. I do feel for you.

GOSH is an outstanding hospital, one of my children worked there for many years.
I don’t pray but I really hope your gd gets accepted on the trial, or if not, that they can help with her seizures. I wish her and you and her family well.

I pray it has gone well.

My very best wishes to you all.

Oh Wyllow of course she’ll be in my prayers. Do hope for a successful outcome. X

The tests are tonight and tomorrow, then we will know if she is suitable, I'll report back when I know
Yes GOSH are brilliant

and so are you all, thank you x

Oh Wyllow - my heart aches for you. But, on a positive note, medical science has come on in leaps and bounds.
I do sincerely hope that she will be able to take part in this trial and that it will be a success …
My thoughts are with the your little DGD and all your family

Thats a lot of terrible conditions to live with. Great Ormond Street are wonderful and she has better chance there than anyway but its a hard path for her and her family.

Thinking of you all 😞 can't pray because of my 13 year old boy put in moral danger at the church school I chose but my heart aches for you

Best wishes and fingers crossed for you and yours.

I sincerely hope your GD gets the help she so desperately needs from GOSH. I’m not religious but you will be in my thoughts.

I will light a candle for her.

Hoping desperately for a positive outcome for your dear granddaughter and her caring family.
I await your news🌻

Hoping for a positive outcome for your family.

My sympathies, Whingey. Not right at all 😡 x

They start a 24 hour observation tomorrow while she is wired up to stuff to look at brain and heart patterns, then have a chat on Friday about it with key staff. She will be OK, Dad there, and she has her tablet - its a big one, and she can see the colours and shapes of the cartoon characters at 6 inches away bouncing up and down and sings along.

I hope she is accepted onto the trial Wyllow3, life would be so much better for her with less fits. Fingers crossed here too.

Magenta8

I will light a candle for her.

And me