What a difference a day makes 😢😢

Well done Cossy; congratulations on brilliant Granny-work with the hospital.

Morning

A rather horrific and harrowing week at Homerton, long story shortened;

1) Only 1 nurse in NICU with 5 babies, Henry’s breathing tube disconnected twice, second time DiL had to run out of NICU to fetch a nurse as Henry’s heart rate and oxygen levels dropped very rapidly,

2) 3 separate incidences with lack of stoma care, one resulting in my daughter watching waste pour out over an uncovered Henry for 45 minutes as nurse panicked

I travelled to Homerton on both Sunday and Monday to raise my concerns.

Logged it all first with PALs and they arranged for parents, and myself and the other GM to meet with a professor and Matron yesterday.

Luckily I did my research first around policy/protocol/processes in a NICU and Homerton and clinical processes and then fully explained calmly and with clarity.

Result is several apologies, no attempt to excuse or deflect, full clinical update, several pages of notes taken by Matron, and authorisation for me to phone up anytime, day or night, and speak with any member of staff.

Mummies feeling far more comfortable now to 1) ask questions, 2) that any breaches of protocol will both be reviewed and immediately addressed.

Good news is, despite everything, Henry is now a whopping 3lbs and is stable more than unstable.

There are concerns around his eyes and brain bleeds, but almost everything else is now improved.

Very gruelling two days for us all, but well worth it for both our own Henry and every other baby on their wards.

Onwards and upwards 🙏🩵

It's such good news that Henry is doing so well. You must be very proud of him.

Thinking of you all Cossy. If Henry's in the Homerton it's a wonderful hospital in specific areas of medicine, including care for prem babies. I'm originally a Hackney girl and that hospital has provided superb care for members of our family including two tiny premature babies who went on to thrive. Keeping my fingers firmly crossed and sending Henry and all your family my best wishes

Glad to hear Henry is still fighting on. He's a little trooper.
Look after yourself Cossy. Very stressful time so no wonder you aren't very well.

What a big step..bless him.. take care now Cossy

Fantastic and uplifting news Cossy about your tiny grandson, Henry.

Sending lots of love to you and Henry.

💐💐💐

As always, thank you all so much for all your comments, positive stories, reassurance, support and love.

It really bolsters us and we all so appreciate it. 🩵

Pleased to see the update Cossy. Little Henry really is a fighter, and is doing well. As many say, slow, steady progress is good.
I hope you soon feel better, too. 💐

Ah, well done Henry, slow but sure x. I can't believe its been 8 weeks, what a little fighter. You are all going through such a tough time Cossy it must be exhausting, do try and get some rest if you can x

Pleased to see this update. Keep going, Henry! Lots of people are rooting for you ❤️

Two hours off the ventilator sounds like a big achievement at his tender age!
Lovely words of support from Moth62.

Hope you're feeling better soon and can visit again Cossy.

Thank you for the update. Slow but steady progress is the way to go. 💐

Great to hear this.
Everyone is rooting for you and the Family.

Excellent news, Cossy. Look after yourself.

Thanks for the update Cossy

I hope you feel better soon

Pleased to read this update.
Taking his time - slow and steady - well done Henry!

Hope you feel better soon Cossy.

Keep going little man x

Growing slowly and gradually gaining strength sounds just right. Testament to the loving care of his family and the wonderful NHS.

Bless his little heart, he's a determined little champ.

I hope you are feeling a bit better Cossy, it's been a heck of a time for all of you.

Slow and steady wins the race. He must be getting ever closer to coming off the ventilator for them to even try. Bless him he's done so well, amazing he's 8 weeks old already. Thanks for the update Cossy and sending very positive vibes to all. x

Lovely update, thank you. Our wee boy was three months before he came off the ventilator, so don’t worry, it will happen. ❤️

Slow and steady wins the race, Henry. 👏
Thanks for the update, cossy.

Thank you for the update cossy

Henry seems to be a little warrior x