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I need a Rant

(59 Posts)
MawBroon Wed 08-Mar-17 08:24:42

Hopehope I can feel my Bp rising as I read your post. I am so relieved DHis now 69 and we can put all that behind us, but the indignities of our treatment by ATOS 5 years ago (including appealing at a tribunal, which he won) were heartbreaking. Eventually a good friend advised us to appeal under Reg 29 2b (then) something like " the fact that he was suffering from an incurable disease which could not be treated with any recognised therapy " meant he did not have to go through further assessments for ESA. Two weeks after the tribunal he was admitted to hospital with sepsis and was in three different hospitals for 3 months , flat on his back, needing full nursing care, IV antibiotics etc and while he was in, they sent another assessment form! I filled it in on his behalf for the state he was in (frequently not far short of comatose) and also rang the issuing office and let rip. We heard no more and 6 months later he turned 65.
I can honestly say one of the most stressful periods of my life.

grannypiper Wed 08-Mar-17 08:24:09

Hope what an awful situation.The only advice i have is to yell and stamp your feet then take a deep breath and remind yourself that this is the very last time you have to go through this. Goodluck and i hope all goes well.brew&cupcake

kittylester Wed 08-Mar-17 08:17:43

I'm sorry you are having to go through this, too. My advice would be to talk to cab who were a brilliant help with my son. And could your doctor intervene.

Please come back and rant if you need to but let us know how things progress.

durhamjen Wed 08-Mar-17 08:08:19

That happened to my husband, too.
We contacted someone at Ageuk and had a retired solicitor come round to fill in the forms for us as my husband could not get to the centre. It was accepted that he could not get there under his own steam.
Can/have you contacted Ageuk?

gillybob Wed 08-Mar-17 05:21:03

So sorry to hear what you and your DH are going through at the moment Hopehope . Sometimes I wonder what planet half of these government bodies live on (it's certainly not the real world) . My family are going through hell with our local education authority so (although different situations) I can fully understand your frustrations when it appears that no one is listening or even gives a damn.

Ten months is a very unreasonable time to wait for an assessment and I agree so much can change in this time. Am I right in assuming that if assessed correctly "they" will get off DH's back, so to speak and allow him some peace? In one way it is a good thing that they will assess him based on "that day" as assessing him using 10 months out of date information would be ridiculous. It also seems so stupid that your DH is close to retirement too. I can appreciate that the stress and anxiety can often make those already in ill health so much worse.
I am sending you and your DH my very best wishes in the hope that once this is over you are left in peace. flowers

PamelaJ1 Wed 08-Mar-17 05:14:13

Having never gone through your experiences I can only imagine your frustration, hope it gets sorted out soon, I expect that you will just get through it when you will have to fill in his pension forms! Hope you have your gateway cards so you can do that on line. ?

Cherrytree59 Wed 08-Mar-17 00:50:34

hopehope Thank goodness that GN has least given you somewhere to vent your spleen.

Wish I could help
I have in the past filled in
'war & peace forms'

Do you think it would worth another phone call tomorrow in the hope that maybe you would be able to talk to a different person (with more understanding)

Good luck flowers

SueDonim Wed 08-Mar-17 00:20:06

I've no helpful ideas, Hopehope, but couldn't close the page without commenting. I'm very sorry you're being put through this. flowers

Hopehope Wed 08-Mar-17 00:08:35

I hope it is ok to put this in chat, if not then apologies in advance. I am beside myself. I feel ill, I feel like I am just on the edge, and want to pull out my hair, or someone elses!!. I am a person who gets on, copes well no matter what life throws at me, but right now I do feel that one little nudge could tip me the wrong way.( Sorry if this drags on a bit).

My DH has a degenerative, progressive disease. He is on DLA, and the support group for ESA. He has not worked since September 2012. It was a complete nightmare when he had his first assessment for the work capability thing at the start of 2013. He scored no points. when I saw the copy of the report it was a disgrace, Lies, full of lies. we appealed, got MP involved, Doctor was greatly supportive, and they changed their minds before it went to a tribunal. The stress at that time, just diagnosed, not yet on the right medication, and suddenly having to give up the job he loved which was also most of our income was unbearable.

Shortly after that he was also awarded some DLA. That will have to be changed to PIPS at some stage, and we accept that although another assessment for that is not something to look forward to, BUT we expect it, we know it is coming.

Last yr in May he received a form regarding the capabilty to work assessment. Of course we had to fill it in and we did right away. Today TEN months after they received the form they sent an appointment for the end of this month for his assessment. TEN MONTHS!!! Here is the most ridiculous part. he is 65 on 5th July this year so when he goes for the assessment he will have about 15 weeks left before ESA stops and his pension kicks in.

I called them, got a manager to ring me back which they duly did. Was told he would have to attend or they would stop his money. I said the form he filled in was ten months ago it doesn't apply now, his condition worsens, has worsened, medication changed too.
I was told oh that wont matter they will just assess him on how he looks on the day!! I then said to him was he telling me that this form which is at least 30 pages long, from memory means nothing?
His answer was " Yes basically"!!! I think that is appalling, and the thing that galls me more than anything is 1. We have to go through all this.
2. It makes my DH really poorly with the stress and anxiety. I have to do everything he cannot do this himself, and that gets him down too. I could weep, honestly I could sad.
Sorry for long rant I don't expect a reply just needed to vent my spleen and get it off my chest. Thank You to all who bother to read it.