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I have to write this down

(93 Posts)
PRINTMISS Sun 19-Jul-15 07:56:21

Our lovely son was taken into hospital on Friday - he was bleeding both ends. He was absolutely terrified! He refused point blank to go in the ambulance, and the staff where he lives were trying to persuade him. One of them telephoned me in the hope I could help, but when I arrived he was in a terrible state, and past reasoning with. His blood pressure was on the floor and there was a very real likely hood that he would die. It was impossible to give him a sedative because his heart rate was fluctuating. Everything was done to try to get him into the ambulance, his social worker was called, and in the end the police, because be is a vulnerable person who was being difficult and needed special care. In the end they managed to get him out of the house, then eventually on to the trolley where they had to strap him down and then hand-cuff him. I am devastated that my beautiful happy son had to be treated like this, but I know it was necessary, and to be quite honest, the policemen and social worker were visibly upset. I keep seeing Robert lying on that trolley struggling against the straps and getting more and more upset. My husband is trying to be sensible about it, but is equally upset, fortunately I have a great daughter and son-in-law, and the staff who care for Robert treat us like their family - they too were really totally at a loss as to what to do. The staff at the hospital were beyond reproach, Robert had finally settled when he got there, but was still being difficult. Yesterday he was very sedated, they are keeping him that way for the moment, he is just frightened by all that is happening. I know I should not think like this, but I keep seeing our lovely son, who would not hurt a fly, being treated like a criminal with the hand cuffs and strapping, and although I know that it was for the best, I cannot help but feel that he feels like that too. Oh!, I am so upset that this happened to him, and now there is nothing I can do but sit beside him and hold his hand. I thought I would feel better writing it all down, but the tears are streaming down my face, and I really do not want my other half to see this, as it upsets him even more. I realise our son might die, but I hate what has happened, and that he might die hating us all for the way he has been treated.

dustyangel Sat 01-Aug-15 15:37:25

Thank you for updating us PRINTMISS. I was just wondering this morning how you and Robert were. Your DH as well of course, I'm sure he has been just as worried as you. flowers

Marelli Sat 01-Aug-15 15:18:36

Good to hear that Robert is back to his familiar surroundings, and is feeling so much better, PRINTMISS. You'll both be able to relax a bit now! flowers

Sewsilver Sat 01-Aug-15 10:29:47

Print Miss, I have just read this thread. I hope both you and Robert are feeling better and manage to get some rest now. It's so hard isn't it for those of us who have adult children who can't always articulate their needs and become easily bewildered. My thoughts are with you.

MiniMouse Sat 01-Aug-15 09:29:15

So good to hear that Robert is back on an even keel PrintM Made my eyes water reading about his attempt at catheter removal shock Hope he doesn't try that again! Hope you have a less fraught weekend flowers

PRINTMISS Sat 01-Aug-15 08:57:14

Just an up-to-date, Kitty reminded me. Robert has been home for several days now, and is being just Robert which is a relief. Evidently he decided to remove a catheter himself (which must have been painful) and this has resulted in occasional bleeding, but nothing too much to worry about, the staff where he lives are able to cope with that, and Robert does not seem to be too perturbed about it. It was so good to have so much sympathy and support from you all, thank you.

TriciaF Fri 24-Jul-15 17:05:20

Good news! Hoping he'll soon be back to normal. Bless him.

Lona Fri 24-Jul-15 16:42:29

Pleased to hear that PRINTMISS

numberplease Fri 24-Jul-15 16:39:27

Nice to hear good news!

kittylester Fri 24-Jul-15 12:22:32

That is super news, PRINTMISS, you must be so relieved. I hope things go from strength to strength for you and for Robert. brew

moomin Fri 24-Jul-15 11:26:28

That's good news Printmiss, a relief for you would be an understatement flowers

Luckygirl Fri 24-Jul-15 11:16:46

How wonderful to have him back, safe and recovering - what splendid news.

Ariadne Fri 24-Jul-15 10:55:58

Printmiss I have only just logged in and have read this whole thread - what a dreadfully distressing time you (and Robert) have had. I am so glad he is back where he feels safe, and where you know he's safe! sunshine

downtoearth Fri 24-Jul-15 10:48:35

Good news printmiss I hope the right medication is found for him and he isn't troubled by this againxxx

POGS Fri 24-Jul-15 10:00:15

Printmiss

What a relief for you all.

I hope Robert will go from strength to strength . flowers

TerriBull Fri 24-Jul-15 08:47:43

So sorry to hear about this worrying time for you and your family I do hope your son is well on the way to recovery.

I think many of us miss your daily posts on the "Good Morning" thread when there is a long lapse and hope that everything is alright, clearly you have had a very stressful time of late.

Best wishes to you and your family and hope that your dear son is back to his old self before too long.

daffydil Fri 24-Jul-15 08:39:26

So glad to hear that Robert is back in familiar surroundings. Hopefully this will help him to feel secure and this will he in his recovery. Allow yourself some healing time too

Anya Fri 24-Jul-15 08:12:38

You've both been through an ordeal. I hope everything gets back to normal soon and you find the cause of the initial problem.

PRINTMISS Fri 24-Jul-15 07:50:16

Just an up-date to say that Robert is back in his own bed now. He has been through so much these past few days, most of which he finds difficult to understand, and the staff have been really kind. Hopefully he had a good night's rest and will soon be back to his old happy self. I find it hard to see him so subdued and bewildered. Thank you all once again.

Tegan Wed 22-Jul-15 14:06:06

It does sound like a stomach ulcer. Could be a result of medication that he's on, perhaps? A friend of mine was very ill with an ulcer that was caused bytaking ibuprofen without omeprazole sad. Pleased to hear that he's a lot better, though.

downtoearth Wed 22-Jul-15 13:17:08

fingers crossed that he has no recurrence and that he is able to smile once morexxxx

numberplease Tue 21-Jul-15 16:59:52

Good to hear that things are progressing satisfactorily, I hope that Robert continues to improve and get better.

daffydil Tue 21-Jul-15 08:07:16

So glad to hear that Robert is still improving and that he is receiving such excellent care. We will all be thinking of you.

Lona Tue 21-Jul-15 07:59:18

Good to hear that he is improving PRINTMISS, you must feel relieved. I hope they can get the problem sorted without upsetting him. flowers

Marmight Tue 21-Jul-15 07:52:44

What a relief to you to know he is improving and that he is in a safe place where the care is so good and understanding. I hope things get better daily and he is soon well again and 'home'. flowers

PRINTMISS Tue 21-Jul-15 07:47:08

Thank you all so much for your kindness and understanding. Robert had improved again yesterday, but they are still not sure what is/was wrong with him, and thinking along the lines of a stomach ulcer. We saw the doctor who assured us that they would not send Robert home until they were certain things were under control. They do not want to do too much investigation as he gets very distressed, although he is much calmer now, and the nurses very patient - one of them said yesterday - "He is so lovely he is always smiling," which is true (but not on Friday!). He had some food yesterday the first time on two days, and they are waiting to see if that causes any more bleeding. Oxygen levels keep dropping but quickly pick up again. Today will see the physiotherapist getting Robert out of bed - they had to ask us if he could walk on his own - something we take for granted, and yet of course they could not really ask him, and know for certain he understood - which of course he does, but they do not know that. Difficult for everyone, but their patience is fantastic. Thank you all again, will let you know how things progress.