I really don't know what to do with myself today. My granddaughter has been making really good progress then two days ago everything changed and today she's really very poorly again. She was beginning to breastfeed and had just come off breathing support and then she had an extreme reaction to some oral medication and is back to where she was a couple of weeks ago - only it seems to be a much more serious problem now. It's night time there and my daughter has left the hospital completely exhausted and just gone to bed, so there won't be any more news (I hope) until about 8pm our time when my daughter returns to the hospital. It's a constant nagging ache - I know that worrying doesn't help and I'm keeping myself busy and trying to divert my thoughts, but I feel so, so useless!!
Baby's gestational age is nearly 37 weeks now and many other preemies seem to be out of the woods by this stage, but for our little one it seems that every advance is followed by a setback. My daughter said that baby was crying a lot today; something that has rarely happened before and is breaking my daughter's heart. 