My granddaughter aged 9 was diagnosed with a brain tumour in May. She is now being given end of life care by the local hospice at home. My heart is broken, I love her so much. I used to look after her three times a week until a couple of years ago when her mother gave up work. My son and daughter in law now want it to be just them looking after her and I have to wait until they say I can visit, at present a couple of days a week. I do understand this but feel desperate at not being able to see her more. My biggest worry is that for the past 3 weeks she has been unable to speak, move, or open her eyes. She is fed via an NG tube. She can hear, and the thought that she may be so frightened but cannot tell anyone is terrifying.
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Bereavement
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