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Please help with advice about brain cancer!

(6 Posts)
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Leonid Fri 29-Dec-17 13:42:35

My sister has 3 kids (41 years) in May 2017 was diagnosed in Anoplastic multiform glioma.

Pathology report shows:
MGMT - Non methylated
IDH1 (R132) negativ (IHC)
PCR signal unmethylierte sequenz - positiv
PCR signal methylierte sequenz - negativ
ATRX: partieller Verlust (IHC)
H3K27M: negativ (IHC)

From August 2017 she got
Temodal for 3 months (7 days in, 7 days off) growing continue.
In November she got Avastin +, Ironatecan, growing continue.

December: just Avastin

Now she is getting:
Kepra 3000
Vimpat 100
Dexamethason 8 mg
Vitamin C, B, D
L-Carnitin+Lymphdiaral
Boswellia serrata
Unizink
Kytta Sedativu
RSO - 0,5 a day
Ajurvedic treatment

Plan to have Optune in 10 days.

So far we cant stop the growth.

Can you please advice useful protocol/treatment plan which can help stop tumor grow?

Many thanks in advance.

Best regards,
Leonid Gluskin

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annsixty Fri 29-Dec-17 14:41:26

Sadly I am not an oncologist.
I hope your sister gets all the help she can.

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humptydumpty Fri 29-Dec-17 14:43:30

Leonid you would probably be better off looking at cancer charity or NHS websites; good luck anyway.

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loopyloo Fri 29-Dec-17 14:45:56

Contact someone at the hospital for Neurology and Neurosurgery at Queen Square, London.

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MissAdventure Fri 29-Dec-17 14:59:51

So sorry to hear about your sister. I don't have any advice, I'm afraid. Best wishes.

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judypark Fri 29-Dec-17 17:26:47

This is very sad and I understand that you want to help your sister. The cancer that you describe is very aggressive.
Maybe, with your sisters permission you could accompany her on the next consultants appointment to explore how you can further help her and her family.
Just a friendly word of warning, this is a public forum and your post details confidential medical information of her results and medications plus you appear to have given your full name. I wish you well.

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