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Ichthyosis Awareness Month

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hildajenniJ Tue 02-May-17 15:22:14

May is Ichthyosis awareness month. Two of my grandsons suffer from x linked ichthyosis or XLI. The condition is passed from mother to son and until grandson no. 1 was diagnosed we had no idea it was in the family. Fortunately my mother was still alive and was able to tell us that two of her brother's had very dry, scaly skin. The boys lack, or have very low levels of the enzyme steroid sulfatases which affects how skin cells are shed. It also seems to have a role in Autism. The research is in its infancy, but it is extremely interesting as I'm sure you know all my grandsons have autism and the two with XLI have ADHD.
Here's a link to the ichthyosis site

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downtoearth Tue 02-May-17 18:41:12

My brother suffers from this condition ..so did mum when she was alive...diagnosed in early 70s at st johns hospital in London a specialist centre at the time for dermatology..obviously too late for change..they where told that the condition prevented them from getting asthma and other allergies as was all related...I suffered the allergies and my male and female child developed psoriasis..I have dry skin excema..my brothers has daughter that has no symptons of autism...maybe skip a generation? my maternal GF didnt have skin problems ...interesti g will forward to my brother

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downtoearth Tue 02-May-17 18:42:21

Has no symptons of skin condition I meant to say

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