The details of 500,000 volunteers of UK health information database Biobank have been hacked and put up for sale on a Chinese website. 😮

Luckygirl3

What is it?

It's a huge collection of medical data, which is sold to legitimate research companies. The data is "crunched" in databases. When you read information such as x% of people with diabetes have gum disease (or whatever), the chances are that the data has come from Biobank.

Grammaretto

I'm one of them. I've been a guinea pig since the start. About 2O years.
I've had every kind of scan and test and answered trillions of questions.
It says no names and addresses have been disclosed.
Do I believe that? I want to.

You should believe it. Data is de-identified ie all personal details are removed. The only way you could possibly be identified is if you have a very rare condition and are the only person who fits a number of descriptors.

It's inaccurate to say the date was "hacked". It wasn't. It was sold by one (or more) of the institutions which bought it for legitimate research purposes. It won't be data about the whole person, but about a group of people with a specific condition eg diabetes or high blood pressure. When research institutions buy the date, they only buy a limited number of datasets.

FriedGreenTomatoes2

“The data were found being offered for sale on three separate listings on the Chinese e-commerce site Alibaba.

Its understood the Biobank, which is independently run from government, had “extremely lax” security arrangements.“

Where does it claim that Biobank has extremely lax security arrangements?

I'm one of them. I've been a guinea pig since the start. About 2O years.
I've had every kind of scan and test and answered trillions of questions.
It says no names and addresses have been disclosed.
Do I believe that? I want to.

So disappointing. It was a valuable resource and has been used in many legitimate medical research projects.

What is it?

“The data were found being offered for sale on three separate listings on the Chinese e-commerce site Alibaba.

Its understood the Biobank, which is independently run from government, had “extremely lax” security arrangements.“