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Osteoporosis

(61 Posts)
MissAdventure Tue 26-May-26 09:36:40

I've read that it breaks down bones and leaves with a honeycomb texture.

So how it so, so painful?

If there are no bits that are out of place, nothing grinding or rubbing, why is it so difficult to get about?
Does anyone know, please?

MissAdventure Thu 28-May-26 08:49:22

No problem.
A leotard and the faint hum of 'Bolero' wouldn't go amiss, I'm sure.

Frogs Thu 28-May-26 08:37:30

MissAdventure

Frogs

I’d like to know how I could have learnt to ‘fall properly’ when I slipped on ice, breaking my wrist. Then 10 years later flying through the air after tripping on a broken paving slab. 🤣🫣🙀x

You should have done a triple toe loop then a twirl, maybe?

I’ll try that next time 🤔😀

Luckygirl3 Thu 28-May-26 07:38:33

I had to come off HRT patch when I was 60 as GP refused to go on prescribing it as per the then guidelines. I was low risk for problems .. had had hysterectomy so did not need progesterone element.
Since then the problem began ... several fractures, osteoporosis.

We try and follow medical advice but it goes in fads!

I have been on so many heart drugs that have caused me so many problems ... there seems to be a cocktail contained in the protocols and it is churned out regardless.
I often think as I am lying on the op table that at some point the stent, pacemaker, ablation etc will be seen as barbaric by future generations! ... as with all our current treatments. Like blood-letting!

paddyann54 Wed 27-May-26 23:59:54

Oh and the incidence of heart attacks and strokes increases dramatically when you come off HRT….my sister wasn,t told that…

paddyann54 Wed 27-May-26 23:57:58

Both my mother and her mother had severe osteoporosis like a previous poster my mum lost over 6 inches in height and was. crippled with pain.I had 2 breaks in my 50s and saw a gynaecologist who advised HRT for my menopause and recommended I stay on it for life .
I haven,t had any breaks since,my sister stopped taking HRT and within 6 months had two heart attacks and a series of strokes that have left her paralysed down her right side.
She fell just before Christmas and broke two bones.
They sent her for a dexa scan and she has been told she now has osteoporosis.Before she stopped the HRT she had a scan amd was told her bones were exceptional for someone in their 70s.So having the protection for those years was lost very quickly by coming off the HRT.
I,m currently having a dispute with my GP about me staying on HRT for life as advised by two gynaecologists,I,m stressed to the max in fear of the same horrible outcome as my sister,
I won’t come off it without a fight!

MissAdventure Wed 27-May-26 19:40:03

I used to care for a lady who was 96 (well, actually her daughter who was only in her 60s)
The mum was a blooming marvel, cooked every day, ensured her daughter was cared for, emotionally, physically and mentally.
She couldn't get on with tech, though, and was too worn to a frazzle to suddenly learn what to do.

MayBee70 Wed 27-May-26 19:32:08

I’m a complete technophobe sad. Even scared to go anywhere where I have to use a car park in case I have to use Ringo ( in fact my tech savvy daughter couldn’t pay for a car park recently because she hadn’t put any make up on and face recognition didn’t recognise her…nearly missed a train because of it). But I digress….

MissAdventure Wed 27-May-26 18:57:21

When you clicked on certain options on the nhs app, the information wasn't there until recently.
Presumably, unless there's a conspiracy to keep me in the dark, for all the other patients at the same practice.

Theyve begun filling in, little by little.

twaddle Wed 27-May-26 18:39:31

MissAdventure

Our app has only become more user friendly, with information, and so on, since a new young gp joined it.

It's also on the NHS app, which has been going for years and is nothing to do with a new GP.

MissAdventure Wed 27-May-26 18:25:32

Our app has only become more user friendly, with information, and so on, since a new young gp joined it.

twaddle Wed 27-May-26 18:25:06

MissAdventure

Exactly my point.

So why didn't you check your own records?

MissAdventure Wed 27-May-26 18:23:41

Exactly my point.

twaddle Wed 27-May-26 18:20:43

MissAdventure

Good, because I've no idea what you're talking about. smile

You can have access to your medical records!! Everybody does.

If you've been iron deficient for five years and were tested, I don't know why you weren't told.

MissAdventure Wed 27-May-26 18:17:49

Oops, sorry Cath9,
I didn't realise you'd posted.
Sounds as if you've hit on the right note for your osteoporosis.

MissAdventure Wed 27-May-26 18:14:27

Good, because I've no idea what you're talking about. smile

Cath9 Wed 27-May-26 18:12:48

Due to having been on the same medication since aged 8yrs of age that has led to osteoarthritis as it takes away the vitamin D . For this reason I have been taking vitamin D for many years and for about 10 yrs an injection every 6 months. So far no major aches or pains although I do try and walk up a steep lane every day.

twaddle Wed 27-May-26 18:07:25

MissAdventure

Not everyone has access to results and reports, but to my mind, if a pateient had complained of fatigue consistently, I would have a few things i would check on, if i was a gp.
Vitamins and iron would head the list, surely?

Everybody in the UK does have access to results, unless they can't get online. You obviously can because you're here.

You can either register with your doctor for Patient Online (or whatever they use) or use the NHS app.

You wrote that the doctor told you that you'd been low on iron for five years, so presumably you've been having tests but they weren't reported to you as not normal. Otherwise, any claim that you were low on iron was a guess. I have no idea what information you've been giving your GP, so really don't know what you're complaining about.

Milliedog Wed 27-May-26 17:57:12

I'm coeliac and osteoporosis goes with it. Dexa scan in 2018 showed lumbar -3.8, Right total hip -1.3 and
Left total hip -1.7
Took alendronic acid from 2003 - 2006 and Strontium Ranelate after that before stopping all medication. My coeliac mum took alendronic acid for years but later tests showed
that her bones were, according to the consultant, "Shot to pieces.".
50 % of all older women have osteoporosis. Drugs are pushed at us but, according to my consultant, there has been NO research into other ways to combat it because no money goes into such research. My own doctor said that no one really knows the long term results of the drugs so at nearly 75, I've decided not to take any more drugs but have bought a vibration board and try to use that when I remember.

MissAdventure Wed 27-May-26 17:37:36

Not everyone has access to results and reports, but to my mind, if a pateient had complained of fatigue consistently, I would have a few things i would check on, if i was a gp.
Vitamins and iron would head the list, surely?

Nightingales Wed 27-May-26 17:20:23

I was told 4 years ago by an osteoporosis specialist that I did not have it and to go live my life, eat a healthy diet and not worry. I have severe osteoarthritis, both hips replaced, loads of back problems and now my spine MRI shows a fracture caused by osteoporosis . So now I am in the state of confusion. The meds have such severe side effects.

Bea65 Wed 27-May-26 17:09:58

MissAdventure

My last lot of blood tests, the new gp told me that I've been low in iron for the last 5 years or so.

Its nice to finally be informed!!

Likewise in the last year, finally had VIT B injection as results showed deficiencies..when I saw a new GP in March, showed him my MRI and he questioned what my doctor had done and if I was on medication for this issue…he seemed astounded that I’d not had any discussion about about my 2spinal fractures seen on MRI scan last year…
This has left me reeling that no action was taken..

Just had Dexa scan and I let radiographer know I had 2 fractures and wondered if they’d healed at all…she let me know that the fractures I have , NEVER HEAL …

MayBee70 Wed 27-May-26 17:02:36

I think I’ve been low on iron forever. Sometimes I feel that I could just lie down on the floor and go to sleep…even in the street or walking round a supermarket.

twaddle Wed 27-May-26 17:02:13

MissAdventure

My last lot of blood tests, the new gp told me that I've been low in iron for the last 5 years or so.

Its nice to finally be informed!!

I always check my own results. If I'd seen that my iron results were low but no action was to be taken, I'd query the lack of action.

There was a thread about people having access to test results. This is why they should.

MissAdventure Wed 27-May-26 16:56:32

My last lot of blood tests, the new gp told me that I've been low in iron for the last 5 years or so.

Its nice to finally be informed!!

MayBee70 Wed 27-May-26 16:52:59

I don’t know if things have changed but when I first started having arthritis I found the best information came from Australia; I felt that they were far more knowledgeable about diet and exercise. Maybe it’s because it’s a very out door’y sporty place. When I started taking iron tablets after a blood test I realised that I needed to take them on an empty stomach with Vit C but my doctor didn’t give me any advice. Maybe they assume that everyone will consult Dr Google?