GD has scoliosis

I didn’t realise that aonk, but there will be other books on the subject.
I hope you are feeling a bit better about the situation now you have had some feedback but I remember when my dd was diagnosed we felt quite alone.

Thank you for the helpful suggestion of a book about a girl with scoliosis. It’s an excellent idea. I googled the book Deenie and found that it has been criticised heavily for inappropriate content about sexuality and puberty. Sadly not suitable for my DGD.

Charleygirl Deenie is a book about a young girl with scoliosis mentioned by someone a few posts back.

I’ve sent you a PM
It corrected “brace” for “brave” ❤️Which most probably sums things up x

silverlining I am sorry, but you have lost me (not difficult) but I have no idea what Deenie means. I have never heard of it before.

By the strangest coincidence I was looking through my daughters books this morning and the first book I saw…was Deenie.

From a professional view I am well aware of scoliosis but I am 25 years out of daye and as nobody in my family developed it I had no reason to keep on top.

In those days a spinal fusion was carried out and a rod inserted. It did take many months to recover, but it was major surgery.

As you can see it hasn't affected Princess Eugenie at all, having had two lovely children.

The length of the wound can be a psychological problem but with time it fades.

"in my day" it was classed as everyday, normal surgery.

The RNOH hasn't chaned, I had both knees replaced there and the wards are astill tin huts!

Thats a great suggestion.

Deenie by Judy Blume is a story about a teenage girl diagnosed with scoliosis who has to wear a brace. It may be of interest to you, DD or GD although there are probably others written more recently.

It’s a massively expensive operation. I think the titanium alone costs an absolute fortune.

The scars are also amazing when you imagine what they actually do! Just a perfectly straight, very thin line

saltnshake

Twaddle you are letting your bias show in your remark. Just because she is a princess does not mean she was less deserving of treatment or had superior treatment. Princess Eugenie was treated at The Royal National Orthopaedic Hospital Stanmore. She was treated by NHS surgeon and nurses. She now raises money to support the improvement of the hospital. I have seen photographs of the hospital at the time of treatment, certainly not luxurious more like old concrete blockhouses. Aonk, I wish your granddaughter well in her treatment and wish her a long and healthy life.

What on earth do you mean? I wasn't suggesting for one moment that Princess Eugenie is less deserving.

It's good to hear that she was treated by NHS surgeons and nurses. I guess I'm a bit surprised, but I respect her parents for making that choice and I respect her for raising money for the hospital. The reason I even knew about any of it was because I remembered reading that she deliberately wore a wedding dress which showed her scar.

I mentioned it in an attempt to destigmatise the condition (obviously failed in somebody's eyes).

So how about winding your neck in a bit? I don't have any particularly strong feelings about the monarchy nor any of the members of the royal family. I am certainly not one of the people who piles in to criticise them, whatever they do.

We all have back issues in my family.
My older grandson has extra vertebrae!
My mum was appallingly bent over, and I'm heading the same way.
Standing up straight is getting to be just too painful.

I wish we'd had some sort of intervention (apart from my mum yelling "Will you stand up straight!!)

A friend of my daughter had the surgery to correct this when she was about 14.The surgery was very successful.
A lady we chat to at the school gates has a little girl of seven who is having surgery in July.
It has probably come as a shock to your daughter and granddaughter and they just need time to come to terms with it.
I wish you all well and a successful outcome for your granddaughter 🙏🏻💐

Twaddle you are letting your bias show in your remark. Just because she is a princess does not mean she was less deserving of treatment or had superior treatment. Princess Eugenie was treated at The Royal National Orthopaedic Hospital Stanmore. She was treated by NHS surgeon and nurses. She now raises money to support the improvement of the hospital. I have seen photographs of the hospital at the time of treatment, certainly not luxurious more like old concrete blockhouses. Aonk, I wish your granddaughter well in her treatment and wish her a long and healthy life.

One of mine had scoliosis correction surgery in the past decade as the brace didn't really work. Things have really moved on. They really do know what they are doing ad how to minimise risk.

There was apparently an operation shown on BBC or Channel 4 I believe.

We were all petrified but they give you time to come to terms with it all before surgery (if surgery is needed) and the outcomes are very positive It will all be very raw at the moment for them

My daughter who is 45 this month was diagnosed with scoliosis at 14. It appeared very suddenly just before Christmas. We would have noticed while swimming on holiday. We saw the GP in January who gave a very detailed explanation, possibly because he had a student with him. We went down the private route as OH had BUPA with his job. So we saw a Consultant in Oxford who said she needed an operation to insert rods in her back. We chose a date in the Easter holidays so she didn’t have to miss any school. All went well. She had to wear a plaster cast for 3 months. I think these days the cast is removable. Annoyingly a couple of years later one of the screws came loose so she had the rods removed. Every five years she attends the National Orthopaedic Centre in London to see how things are going.

It is a big operation for a teenage girl. There is a large scar involved.

There is support. We were put in touch with a girl in the area who had the operation. She and her mum popped over for a chat.

I am sure all will go well. Just make sure you have all the information.

Many of her friends will also be wearing braces.... on their teeth, in full public view.

Thank you to all those who have replied. I realise we can’t “put the cart before the horse.” This is going to be a long drawn out process. We are all shocked and must learn to get used to what we can’t change.

PM sent

I had a quick google and Scoliosis Support and Research is in Latimer Road, London.

My dd was diagnosed at 15 with 38 degree curvature. It was a terrible shock. She wore a permanent brace for a while before being fitted with one she could remove for a shower etc. Always stressful when attending hospital in case she needed surgery but she was always just out of the range which required it.
She is nearly 50 now and has coped well over this time.
There was a scoliosis society which we joined which helped us a lot with the questions we had.
It may run in the family as my other daughter had a mild curve as does my gd.
It’s mostly girls who get this and it can be visible if you ask the child to bend over to touch their toes , stand behind and if the shoulder blades don’t match or are a bit wonky that can be a sign.

Just wanted to say that diagnosis sounds tough at her age, I have a DGD at a similar age so can imagine the shock and heartache for you all.
You’d do anything to take the pain away for them. I’m sure once she starts her treatment she’ll feel better about it all. Wishing her all the very best.

My good friends daughter had this at age 14.
She actually had surgery with rods put in her back and then a brace to wear for a while afterwards.
She is now 50 yrs old and you wouldn’t know . She’s lovely and upright with no problems that Ive heard of and I know my friend would have told me.

Good luck 🙏

Please can I add some hope
My close friends grandson was diagnosed as a late teen ( I have no idea how he parents didn’t see it before but …) he was very thin and with a defininate curve to one side so when it was seen by the GP he was late for a brace but he had surgery just like Princess Beatrice had He had to have a few weeks recovering but is now a full on straight backed guy and gained all his confidence and ‘go’ back
Please don’t despair

It's tough and must have been a shock.

My DDiL has a scoliosis. It must have been noticed when she was much younger than your GD . She had a big operation aged 9, a metal rod was inserted and she wore a brace for several months.

She must have been in pain at times and sees a physio for exercises.

She has given birth to 2 healthy girls and has a demanding job and ofcourse everyone forgets what she's gone through.

All the best to your DGD.