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Anyone else on CPAP equipment? Your thoughts please.

(5 Posts)
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Smurf52 Fri 06-Aug-21 16:28:07

Philips have announced that their Dreamstation CPAP machine has a fault where the foam sound baffler is disintegrating and there is a risk of inhaling carcinogenic material.

Prior to receiving a text from the hospital about this (without the mention of carcinogenic of course to stop panickers, I looked that up on google), I felt a small fragment of something coming down the breathing tube and entering my windpipe making me cough. Since then I’ve not used the equipment.

I’m still having problems breathing and want the hospital to issue me with an alternative machine, but I expect there’s hundreds of us wanting the same thing so when I ring I get apologies for not getting back to me earlier.

So now I run the risk of a stroke or heart attack as I stop breathing at night without the equipment. What would you Gransnetters do under circumstances, carry on using the equipment regardless or hold out for a solution from the hospital?

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silverlining48 Fri 06-Aug-21 18:55:55

Sorry no one has responded, maybe they, like me have no clue but woukd think you need a conversation with gp or hospital.
I would ring the hospital and ask to speak to the consultants secretary go check with them. They should then ring you back. I hope you can be assured that all is well. It’s Friday so this will have to wait til Monday. If your breathing gets worse you can decide what to do.
Good luck.

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flaxwoven Sat 07-Aug-21 14:29:31

Advice is as above, contact your Sleep Clinic advisor if you have one, or the consultant's secretary on Monday. Try sleeping half upright if possible. I have sleep apnoea and was issued with a Resmed Escape CPAP machine and mask which has always worked well. It depends which area of the country you are in as it is a postcode lottery. I believe in some areas you have to pay and in some areas there's a long waiting list for the machine. I'm lucky that my NHS Trust has given me the machine without charge as it could cost over £1,000 I think. It's about £120 just for the mask. I can't sleep without the CPAP machine as if I try, I wake up breathless and heart pounding every few minutes, and end up with a dull headache and feeling dopey all day. I have a Sleep Clinic review yearly and this time the nurse handed two new masks and told me to contact her if I had any problems. She said the equipment should have been serviced in May but they are not doing it at the moment due to Covid. Hope you get some help on Monday.

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Smurf52 Mon 09-Aug-21 12:44:11

I'm still waiting to be contacted. The helpline said he had put me down as urgent for the relevant person I can discuss this with. If the Philips Dreamstation is being recalled, I want the Resmed which I know they issue. I too have all equipment supplied free on NHS.

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M0nica Mon 09-Aug-21 14:43:05

DH had the Resmed apparatus. However he had a heart attack last year and triple bypass surgery, and since then breathes normally at night.

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