Burning Mouth Syndrome

Hi, I have this horrible condition. There is no cure unfortunately, I’ve seen a specialist at the dental hospital, had blood tests and saliva tests, everything came back normal. It does come and go, depending on how stressed I am ,currently it’s not too bad ?Good luck, let us know what the dr says.

Oopsadaisy3
WOW! Thank you. It's something to consider. Really appreciate your feedback. Thank you!

Msche the builder hadnt long had the op, we were his first job.
He said though that he at least had some saliva in his mouth, but we didn’t speak much about it, he was still sore but he said that to him it was better than before.

Shrub
I am so sorry to hear that. I can't even imagine living with this condition for much longer but slowly I am beginning to come to terms with it and I think the sooner I do that the sooner I can get on with my life.
If you are convinced about your silent reflux then there are things you can do and I am sure you have already made those changes to your diet and lifestyle. I don't know about the other condition. Since you have lived with this nasty condition for 20 years maybe you can share some tips please.
Take care and thanks for sharing.

I’ve suffered from this for about 20 years and I am convinced it is linked to my hiatus hernia and silent reflux. But the medics don’t agree!

Oh thank you, yes, I don’t really breathe through my nose at night, unless I’ve managed to clear it with a rinse or the spray, so I may try that. Yes, speak soon?

Toadinthehole
Just an afterthought! In case you have difficulty breathing at night and for those who suffer with BMS, I find that nasal strips that help with snoring, really really help. In fact I can't sleep without them at night and wish that I had discovered them years ago when the dry septum and crustiness first started. Anyway good luck and speak soon x

Aww, God bless you too?. You and I sound like we have the same nose!! I have a condition which has caused me to have nose bleeds for last 40 years. After years of cautery/ laser etc. I now have a perforated septum....which crusts and itches, hence the dymista. The Meilmed rinses have been really helpful over the years, but sometimes start a nosebleed. Of course, these are worse since going into menopause! Typical. I like talking as well, so much easier than all this emailing etc. I’ll talk to my friend and pm you when I can. Take care.

Toadinthehole
I also think it's the menopause alongside the stress and anxiety I suffered recently. I am not taking any HRT as I am against it for cancer related reasons and my menopausal symptoms are very mild thank goodness. No, I am not sure if the Dymista caused this. I was told to use it twice a day, everyday. I stopped it as a process of elimination once I read the side effects. And yes, possibly your sore throat is caused by it. I used it because I had crusty septum hence congestion. But for that you can also use a douche by Neilmed.
Anyway I would appreciate any feedback and hope that this chat is helpful for some. Thank you for sharing and totally agree that anything in the mouth is bad. Unfortunately I love chatting with my friends especially now during lockdown and now it's just texting since I can't really talk without discomfort.
Take care and God bless!

I think it’s most likely your menopause. It is a symptom. One of the rarer ones, but a symptom all the same. I get a really dry mouth now since menopause, and it makes my throat sore. Not quite the same I know, but I feel your problem could be the next step. I do have a friend however, who is going through this now, with all the investigations. It started when she had her coil removed, which would have set off a change in hormone levels. She doesn’t have closure yet as far as I know, but I’ve only spoken to her twice since lockdown. Next time I speak to her, I’ll ask how her mouth is. Are you sure the Dymista is causing your sore throat? I use that for allergic reasons, not regularly, maybe three, four times a week. On the other hand, maybe that’s why my throat gets sore! I hope you get it sorted soon, anything in the mouth, well, the neck up really I always think, is horrible.

Did it work @oopsadaisy3
I would love to know please. And thank you for sharing.

We had a builder who had blocked saliva glands in his mouth
( or wherever they are situated) he had an op to sort it out, his symptoms sound a lot like yours .

Dear Tanith,
What a nasty thing to live with. I know, no one seems to be able to help. How long did your longest bout last? Do you suffer from anxiety? Anxiety is root of many medical issues and I am a natural worrier, so lately I've been doing yoga and listening to some mindfulness videos on YouTube which help me. Your mouth ulcers might be due to that.
And I've just read avoiding oranges, orange juice, citrus in general, tomatoes, cinnamon and mint help.
I hope you feel better soon and thanks for sharing.

Had this on and off for a few years nothing really helps it just comes and goes, at the moment I also have a couple of mouth ulcers I’m just off to see my pharmacist for something to soothe them. Both GP and dentist have said it’s one of those things that’s hard to find a cause and neither was much help. If it’s really bad I suck ice chips or a water ice lolly.