Sorry gang not to get back to you after all your good wishes. Can't remember what I said about my week in hospital and if I go back will lose this . Anyway both hospitals couldn't have given me better care and must admit I did feel ill and frightened . Not frightened for me but my daughter as she looked so worried and because of my estrangement with my son his choice as you know I never saw it coming and he did it by email and follow up letter. So everytime I get very ill it falls on her . When I have hidden things before I moved up here about my health and she found out she torn a strip of me so made me promise the slightest thing I had to tell her . I son was the same pre May 2020.
Can't remember if I said about having the angiography. It was done with me wearing my pjs and slippers. They put a heavy lead apron around my tum which hurt as it was purple from bruising from the injections. I had asked for sedation as I didn't know how I would be . A local anaesthetic was put into my left wrist . But unfortunately neither injections worked but I didn't say I could feel everything as I just wanted it over. So lay on my back eyes shut and tears filling my ears. There was a comic moment not funny at the time but I thought it was afterwards . I heard a blue a blue her veins collapsed pinks no good. It took about 40 minutes but I didn't feel the wire and and dye in my heart because of no obstacles they could look all around my heart . Once over a dressing was put on my wrist and then a clear circular tube which was pumped with air to hold the dressing tight so I didn't bled out . Brilliant idea otherwise someone would have had to put pressure on my wrist for 30 mins. I was wrapped in a hot blanket and given the syringe to take with me . Once on the ward after hour some air was let out as my fingers where turning blue. And hours later it was removed.
Wonder who the clear person was who thought about using a balloon as a dressing to stop bleeding . I had visions of them using the ones people made balloon animals out off as proto types before the clear sterile ones .
Went into the fist hospital on the Monday taken yo the second on the Friday . My daughter was visiting and a nurse came and said they are coming for you . So my daughter packed up my things. The only problem I had at the second hospital was the bed was a modern one and didn't lower right the way down . Because of the one injection into my tum that hurt I couldn't get out of bed myself but at the second one I had to get a nurse everytime I needed the loo and I hated it. I felt a nuisance . They nurses all told me I wasn't but it's how I felt . I have a high pain threshold as been in pain with my limbs my whole life but this floored me . Because I can tolerate high pain levels think that's why the local and sedation didn't work. But my daughter said when she had her c section the first lot of local didn't work so they had to give her a double dose luckily that worked otherwise they would have had to knock her out.
At least now I know if I ever have a local again I will ask for double amount. On the Monday I was discharged saw the pharmacist who gave me tablets to bring home,physios who asked about any exercise I did so told them so they said I didn't need them as I was doing everything I could to help myself. I went for an ultrasound on my tum because of the pain. The doctor who did it fetched his consultant to look as he wanted a second opinion. He said the needle had gone into my subterranean fat level and caused inflammation which was giving me the pain . I had visions of Jules Vernes journey to the centre of the earth pop into my head when he said it. And who knew we have subterranean fat levels .
Had my dinner there and my daughter fetched me at 7pm. She had been popping into my bungalow and putting the heating on of a morning and turning it off in the evening as it was bitter cold all week.
If I have said all that well it's me I repeat myself.
Wednesday I went to see my cardiologist. Had all usual tests done before hand . He was the one I saw on the ward at the first hospital and he said you look better than I last saw you . Once seen never forgotten whether that's a good or bad thing I don't know . Hopefully good. Even the nurse with him remembered me from the A& E corridor ward. They found slight furring in my right artery but not enough to need a stent but was going to prescribe a low dose statin to prevent further build up. Because he could have a good look round my heart decided I didn't have a heart attack . Even thought my Torpoin levels where 170 but they also rise if you have a stroke. He is referring me to a neurologist as they think because of my headache ,pain in the left side of my neck and loss of speech I had a TIA a mini stroke. I did explain that my HPX causes me to lose my speech especially as I had an UTI when I went to A&E . But the drug treatment I had was the same as they would have given for a TIA.
He did say my having a rare hereditary neurological condition made things more difficult as he has no idea what it was as he had never heard of it. But told him neither had my neurologist who is a consultant in adnormal body movements.
He was sending a referral letter for me to see a stroke neurologist and hoped it wouldn't be long to wait and they would do a brain MRI last time I had one was 2017. I hate the tunnel but always have them done as they are a brilliant diagnosist device . The CT scan on my brain didn't pick anything up but a MRI can pick up the smallest detail. And I always stay still.
So my cardiologist has discharged back to the care of my GP. But said he would see me again if I needed him .
I have an appointment with my GP on Wednesday as I am still getting breathless and having water retention which is something my GP can deal with and the cardiologist said they would help me .
My tum is now pale purple, yellow with only 2 patches of dark purple. Managed to lie on my side for a bit now. And since Thursday been able to do my exercises without holding on to my bed bar. Went to sit fit on Monday but couldn't do couple of the exercises. Going to try and see if I can use my pedals today as it's circuit training at class on Monday.
Decided to stop going to the Braun Charity craft group. Not because I don't want to but my daughter is worried about me going as it takes 2 hours each way with waiting time for train and bus. But will go for special events. But I have found a craft group that meets once a month above my favourite cafe in the village it's called village but the size of a small town so put my name to go there on the 19th.
I am doing ok not worrying about I could have another TIA. My brother has had 2, 6 weeks apart years ago. But if I get a headache and neck pain will take myself to A&E.
See what the scales say tomorrow but I have had water retention this week so my daily weight in has been up and down but only count Sundays weight in . Been eating my normal diet and having my tablets at set times. That was the only problem in the hospitals was not getting my tablets when I normally take them . I like routine it's how my life has always worked I know I am a control freak 🤣. Better finish this ramble . 😊
