susan I was most concerned and disappointed at your news. I can only describe what happened to your D today as ridiculous! I'm not surprised that she is so distressed. How can things appear to be improving and she finally gets to have a positive discussion, for this then to be turned completely on its head, stop the medication, can't have the tests, liaise with a Dietician (who has gone AWOL?).etc., i.e. back to square 1.
I wonder if the Power of Grans could just possibly help to throw a bit of light on the problem. Would it be helpful to set out some more details regarding your dear little chap's current problems so that we could perhaps come up with an idea to try or some advice we have had through similar experiences or a half sensible suggestion which might just help in some way? Only a suggestion, obviously. You might not want to spend any time setting this out, but I - for one - would be really interested to hear how his current intolerances or allergies affect him and when it started and what his diet comprises etc., especially if I thought it might help you and Henry's Mum to rationalise some of the ideas you might have had recently.
We have had a number of allergies in our family. We also have Doctors, but I'm not one of them. Allergies tend to run in families, of course, and we also have some intolerances. Allergies can be very obvious but when they are not, you end up almost tearing your hair out going backwards and forwards over a diet in efforts to eradicate the culprit causing the problem. Many years ago I sought the help of an allergy specialist in London to solve a digestive problem I had; and more recently I consulted a specialist in France for help with my hay fever - now eradicated almost 100%. I have also had friends whose children have had food intolerances and allergies....one toddler at nursery who used to throw himself downstairs or off high places (as if he was high himself!) simply because, it was found, the dye in the highly coloured Ice Poles that he loved eating that summer was affecting his behaviour in that way.
When Henry is ill, I have no idea what symptoms he has - particularly if they are sufficiently severe to send him to hospital, or what medication he was given recently which improved his situation. But, it seems (probably because it was badly handled today) that your Daughter has just been left wondering.... whatever next. Hardly helpful or supportive when dealing with a baby. Do you want to share any details or would you prefer just to feel that we are all rooting for Henry but anything else would be a waste of time. Do say. Hope you're not offended by this post : I think everyone here is genuinely concerned at the problems you have. PM me if you want - or tell me to shut up. Hugs to you all and I hope that tomorrow you will feel less shaken by all of this.
Cheers!
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