How can they do this?

@Luckygirl I have just realised MP's are not working now. Go to a public hustings and ask the question what will your local MP do to sort this out? question. The press will be there. They will all be trying to secure votes and trying to make themselves look sympathetic so they might just do something to help you.

This is Broken Tory UK. Anyway they can rip pensioners off they will. Bedroom tax, work until you drop, pay
for care, low pensions. They still plan like Mrs May was planning to take away the bus passes (they have already taken the buses from our village, plan to take the winter fuel allowance, we have to use oil and logs no main gas in our village, very poor internet, when it snows in the winter we are often cut off for weeks until the farmers clear our lanes. Yet amazingly idiots vote for them.

@Luckygirl. This is so unfair and sickening. Could you write to your MP and get them to look into it for you. When my auntie 87 was very ill and only had 3-4 months to live her sister 89 who she shared a home with, got a similar letter. My sister wrote to her MP on her behalf and he intervened as the expected life span was so short. In the end my aunt died after just 2 months. Without his intervention my elder aunt would have been turfed out of her home.

Lucky girl. No advice but we are all sending love. Good luck and hang in there

tracked it might be a good idea to start another thread with your query as this thread is quite specific and we are trying to help a distressed poster. I'm sure there are others on this site who will be able to help you but your post could get lost on here

tracker99 - I am sorry you are in this position - I am not sure what it is you are needing from your post. Perhaps you could explain a little more.

HettyMaud - I have applied for this twice and been turned down. An appeal is pending.

Until an insurance scheme is put in place for future generations , which is not a vote catcher of course, this will go on - indeed so ann. In the meantime I, and many others, just have to soldier on in the present iniquitous system.

A proper solution is conspicuously absent from the manifestos currently doing the rounds.

You have no MP.
It is election time.
Make a fuss write to your candidates and the press. Your posting to GN good enough. Email them - make a god awful fuss.
See what the candidates say?
They will bend over backwards. Write to Guardian, DailyMail Mirtor as well as local press. It highlights the problem and the fear of many. It should be in the news now. ‘Cradle to grave’that was the care we expected. It is an election issue they will respond.

Also to add some info from experience. They include your house as asset in the £23k. My mum’s local council (Merton in London) offered the scheme where they would pay full and not claim until house was sold after her death. So there was no pressure to sell.

That still doesn’t answer all your problems. No one was asking my mum to move to a cheaper home. It is Dickensian in its callousness. Get Photo. Do it for everyone. I’m so sorry for your poor husband, there but the grace go all of us. I’m afraid you must fight. I want to see it on the news.

This is dreadful Luckygirl, I am so sorry. ?
I second the advice about going to your Ward Councillor and suggest you consider seeking a slot with your Council leader.
If your MP is a good constituency MP, they could probably write to the Council for you too.

However, you sound like you have taken all the right steps and weighed all the options. Maybe you just want to share this awful experience with GN and ‘sound off’. I can so appreciate that.

Sometimes it doesn’t seem possible that things could get any worse and then something comes out of left field and deals you another blow.
Life can be so hard and so unfair. I am really sorry that you are having to go through this ... and am sending you good thoughts. ??

A relative of mine was promised NHS Continuing Healthcare when she had to go into a home for a while between hospital and being allowed home HettyMaud.
However, she got an enormous bill when she finally went home and felt unable to fight the authorities so she just paid it.

I think Luckygirl said her husband was turned down for this (unbelievable) and that an appeal is pending.

There is a firm of lawyers called COMPASS who are based in Birmingham who will offer free advice and they are experts in frightening off the care home 'wolves at your door". It is a terrible situation which should be taken up by the government. We are going through the exact same situation and Compass have been a Godsend.'

male 80 yrs had bladder and prostate cancer within 3 yrs radiotherapy has left me with ed any others out there in the same position the good thing is I am free of cancer and my OH says that is the main thing we still have each other been married 60 years this year any other views on this .

CONTINUING HEALTH CARE
You CAN apply for the NHS to fund the your husband's care. It is called Continuing Health Care. Many people don't know about it. Your husband will be assessed and there is a lot of criteria to meet. It is difficult but you can get it. You need to contact Social Services. If you are successful, the NHS will pay ALL fees. We were told about this when my neighbour was ill. They applied and got it. It isn't publicised very well. Look on NHS website.

So sorry you are having to go though this ordeal which should never have happened if our politicians had got their act together and decided how care should be funded and supported.

Do make sure you have advice on what monies are rightfully yours and if possible locate into some decent sheltered accommodation. Sending love and hugs.

They cannot legally use your savings but of course you have to use those yourself to live on.
My own H died after being in care for 5months so I did not have this situation for long but still know the grief and frustration it caused.
Until an insurance scheme is put in place for future generations , which is not a vote catcher of course, this will go on.
It is not sustainable for the LA, or NHS to pay for everyone in care, in my large village we have 3 care homes with , between them, 150 residents, at fees between £750 and £1,200 WEEKLY, and then multiply this by many thousands of care homes around the country we can see the problem.
The NHS would be bankrupt in months.
It need funding now for the future.

May I suggest that you contact a local councillor on this and they can take it up with the SS department. Better still the Cabinet Member.

When I was a councillor I had to deal with requests like this and sometimes I was able to reach a happier resolution.

Lucky girl - I don’t, mercifully, know anything about the way the benefits system works in the UK. I do, though, know how cold and inhumane state run systems can be. I’m so sorry you are going through this at such a tender time for your husband and yourself. Please make sure you have support around you with people you can talk, and if you need it, cry with, whilst you are supporting your husband. I’m sure you are already exhausted with it all, and could well do without this. Hugs and flowers from me....

I don't know how any of this works but I sounds like you have explored everything. I would talk to your local councillor about the way the letter was written so that others get better treatment. Talking to your MP is a good idea but not sure you can do that during an election as they are not actually MPs at the moment.

Having a good rant is therapeutic so rant away.

What about contacting the local press? A front-page spread with photographs might be useful. Just a thought.

It is such a dreadful time for you, and so many people affected by the lack of government funding which used to help local authorities provide a better service, now the whole burden of social care falls on the council tax payers locally. I did manage to get continuing healthcare funding for my Mum, as she was judged to need a nurse on call 24/7 even though never needed. That would seem the best outcome for your situation, could you maybe focus on that fight?

As I understand it @Luckygirl, the content of their letter is probably correct but the most upsetting thing is the heartless way it is worded. When your heart is breaking, its often something like this that is just the final straw. My heart goes out to you and I'm so glad that you have a place where he is being well cared for.

oh Luckygirl

I even can`t say unbelievable... but I can send hugs, prayers and .. whatever.. if it helps

seems my husband and I were fortunate that my dh died in hospital a couple of weeks ago.

I dread the future

Legally, you should not have to use your own savings Luckygirl.
Of course you will feel you must in order to ensure that your DH stays somewhere where he is well cared for and not sent somewhere of the LA's choosing.

Pamela it is not necessarily people who have squandered their money all their lives or who have sponged off the state - that is a very unkind assumption.
My MIL was widowed and had very little all her life and did not own her own home. Luckily, she did not have to go into care in the end because she died in hospital before the need arose. However, they would have taken her very small pensions off her to help fund her care had she had to do so. As it was, she had spent a lot of her income paying for patchy care at home.

What a dreadful state of affairs for you Luckygirl! I really think that you need to seek further advice on this from Citizens advice or even your solicitor as I'm not sure how the law stands on these situations. I do wish you well and hope for an agreeable outcome for you and OH.

Have you tried Age Concern or Citizen's Advice although it sounds as if you know exactly what the awful situation is. Years ago when I was fighting the LEA to keep my disabled son in school I told them that one of the worst things about his illness was having to deal with them! So I do understand how you feel and it is a disgrace. It's down to that filthy 5 letter word again that begins with m and ends with Y. Get as much help as you can and know that we are all behind you with this heartbreaking situation. Be strong xx

That is heartless and sad.
I’m so sorry you’re going through this. Make sure you have his power of attorney for everything - maybe you have but it is so much easier if you do. Sending a virtual hug (0)