Granny too soon

Sorry to hear about this latest setback, ga. You must all be feeling so helpless, but take heart that these wonderful units can swerve to deal with crises in a matter of moments and your little grandaughter's care has brought her so far since her birth. One of our little grandaughters was back on the C-PAP just a week before being discharged at her gestational age of 39 weeks, when she got another infection, started wheezing and needed help to feed again. (Crying uses up so much energy and it's back on tube feeding to conserve as much as possible). Very disconcerting to learn the anxious parents were being trained in resuscitation at home. The panic subsided when her treatment took effect and we breathed yet another sigh of cautious relief. My daughter was seeing other preemie babies still being tube-fed and on oxygen weeks after discharge, when they were going to their frequent hospital appointments.

I hope the next news you hear is much more positive.

ga and your DD,

grannya I am so sorry I have not been around much lately and have just seen this thread.
{{{hugs}}} sending you my very best wishes

Oh GA what a stressful time for you and your family. I have only just picked up this thread and see that it has been a very difficult road for your little DGD. I do so hope her condition stabilises soon.

Thinking of your family ga .

Much love, ga. Xx

GrannyA sending love and positive thoughts to your little grand daughter and those who love her.

GrannyA The story of your little grand daughter should make all us Grans realise just how much we take for granted with our new babies. I hope all goes well.

ga - you must be feeling wrung out after all these weeks of suspense. Hoping that you have better news very soon. ((((hugs))))

Best wishes to you and your family, ga. I do hope you soon have some more encouraging news.

I've just caught up on the thread what a traumatic time it is for you GA sending you ((hugs)) & and special thoughts for your DD and her little one.

Terribly worrying for you all ga, very best wishes for the little one

Sending every good wish, grannyactivist. xx

What a roller coaster ga, hopefully she'll bounce back quickly poor little girl.

Very much thinking of you ((hugs)) x

My thoughts are with you, and your granddaughter, GrannyA xx

I just had a middle of the night message to say the hospital hasn't rung, so no news is good news.
Yes, I had the same thought about the crying - that it might be a positive sign, but my daughter says not. Crying affects baby's heart rate and causes bradycardia and desaturation - she goes blue apparently. I'm just praying that she won't have to go back on assisted breathing because it seemed like such a huge step forward when she came off the CPAP/highflow.
I know from other days like this that in two more days she could be doing brilliantly, but for today it's fairly nerve-racking. Thanks for good wishes all.

I reckon jings could be right. Whatever it means I really hope the wee one takes a giant step for the better very soon. Hope your poor daughter manages to get some sleep. You too.

I agree with Jings....crying can be a good sign, she's not unresponsive/sleeping all the time.i know it must be a constant roller coaster of emotions. Any chance of you going out there? It's probably worse for you as you're not on the spot to see for yourself. My young friend with the 24/5 week gestation preemie didn't hear her little one cry for weeks as she was intubated, on CPAP...all sorts of things. She welcomed her cry as it meant she was breathing just with oxygen. Perhaps it's not such a bad sign as you fear. Thinking of you all

Thinking of you and your family.

The crying could be a good sign. If she has the energy to cry...

Virtual hugs and

Thinking of you

Thinking of you all and sending every good wish.