I was looking for a care home in London recently and visited seven care homes before choosing one. Those with places available that were rated 'Good' by the Care Quality Commission in my parent's local area cost between £1450 and £2250 per week. Yet the care they provided really didn't impress me that much.
The ones in my area (near central London) cost between £3000 and £5000 per week. I had no idea this was possible. When looking for a private care home I felt like I was dealing with gangsters or trying to buy cocaine.
After a brief tour one care manager asked me to decide on the spot whether I wanted the room, without discussing it with the rest of the family. She was nicer than the others. Another care home placement manager wanted me to pay £12600 upfront and show the deeds to my parent's flat before she would consider allowing my father a place. During a visit to a very average care home in a rough part of London, the person showing me round said fees would be between £1750 a week and £2000 a week. I said that £2000 a week was out of our budget. At the end of the visit she told me to phone back tomorrow if I wanted the room. The next day I phoned her back and said we wanted the room but needed to know the exact price per week, she hung up on me. I thought there was an issue on the line so I tried again several times until I realised she was hanging up each time and I gave up. I was utterly devastated. I was desperate to get him out of hospital at this point, he'd been there for a couple of months, and both the hospital and local social services were refusing to do a proper needs assessment or care plan.
Clearly I shouldn't have said £2000 a week was too much to that particular care home, or maybe the place was gone, but instead of explaining this to me they just hung up on me repeatedly. I have to tell you here that I was very polite and didn't deserve this treatment. One common problem was that care homes would not be specific about their fees, they just always gave a general answer of between £££ and £££££.
So eventually I sent my parent to a care home far from my place and far from his place as the respite fees were clearly indicated as £1450 per week for short-term care. It looked like a great place and putting him in respite care would help give us some thinking time of what to do long-term.
However now I realise it's not that great, carers are grumpy, the manager is leaving, the carers have strange ideas about what is good for my parent that defy any common sense, like leaving him without water in a heatwave. They clearly do not want me to question any problems in his care even though I am very tactful about this, they do not want any input from me.
Also it takes me over an hour to get there by public transport from my home. When I need to bring him anything from his flat, then I have to travel there first, which takes me at least an hour and a half , then getting to the care home from his place takes another hour and a quarter, then after visiting him it takes an hour to an hour and half to get back home. Or I can get costly Ubers, but I don't like to as every penny counts in this situation.
I would try to organise live-in care but he needs two carers to move him, which means more fees, as well as a hospital bed and a sara stedy, plus his bathroom needs adapting, he lives up several flights of stairs, and he has dementia. His local adult social care social workers are not helpful at all. They don't return my calls, and lead me up the garden path when I ask for a needs assessment. His local council are bankrupt.
If I were a politician I would definitely campaign to cap care home prices, and home care prices, raise care standards and the wages of carers who demonstrate they provide good quality care.
Care homes are chains owned by big businesses and since there is a shortage of care they can charge whatever they like. Unbridled financial exploitation.
I feel like home care managers and marketing managers behave like gangsters, using psychological 'hard sell' techniques at a time when families are worried and vulnerable. I have also found that many carers are simply unqualified workers who are desperate for any job of any sort ,or needed a work visa to come to the UK. Some of these carers truly don't care about the elderly. Having said that, my parent's care is somewhat better in the care home than with visiting carers, where his care was appalling. I had to supervise carers to prevent disasters, like my dad not getting his medications.
I have similar stories about another good friend I help who also has appalling visiting carers in central London. Seeing both my dad and my friend not being cared for is a source of constant worry and heartbreak, and it puts me off wanting to grow older!