I recommend that you read 'Understanding PDA SYNDROME in children.' by Phil Christie and others. It is published by Jessica Kingsley and is excellent! He worked alongside Elizabeth Newson, who first recognised PDA and all the authors are experts in the field,
TRESCO is correct that diagnosis is made at the ELIZABETH NEWSON Centre in RAVENSHEAD ,Nottingham.
I hope you can get as much help as possible as, having worked with such children , I know there is still a huge gap in recognition and guidance. Very good luck in your search!
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